Help Angel Fight Autoimmune & More

My daughter is the bravest young woman I know. Angelita Kennedy Fay Barnes was a premature baby, born almost 2 months early born with pneumonia, asthma, allergies, a hole in her heart and her lungs weren't fully developed. Unfortunately I went home without her. Her first year was an up hill battle, what with her allergies and asthma being completely out of control. It kept her from feeding, as she threw up constantly and lost ground. And instead of gaining weight, she was what her doctors referred to as failure to thrive. By age seven, she started breaking bones, she developed pediatric osteoporosis and as of this date she has broken and fractured almost every bone in her body at least three times because of it. At age ten, she stopped growing, she is 4'7", a little person. Technically she is classified as a proportionate dwarf, or physiologic dwarf, a person who is unusually short but not deformed. She is a dwarf who's skeleton and features are of normal proportions. A recent MRI shows a narrowing of the channel in the lower spine (lumbosacral spinal stenosis), resulting in pressure on the spinal cord and subsequent pain or numbness in the legs. Arthritis and also crowding of the teeth, are all caused by dwarfism. By age 12 Angel developed PI, Primary Immunodeficiency, and had to be home schooled because she couldn't fight off infections. She had her tonsils and androids taken out in 2005 and 2008. After the second surgery, she developed VCD, vocal cord dysfunction syndrome, when her vocal cords spasmed, and closed when the doctor pulled her breathing tube out after surgery. She stopped breathing and her heart stopped. They were able to force a tube back in, do CPR and shock her heart, she was resuscitated. When she was 14 years old, she slipped in the rain hitting the roof of my car giving her a concussion which started her Migraines and seizures. She started having seizures nightly and migraines daily. In November of 2015 she had a seizure so severe that she was unconscious for 2-1/2 days and couldn't talk when she came to. The next day she was able to say one word only and in the days that followed she slowly regained the ability to speak. It took four months of speech, occupational, and physical therapy to make a full recovery. The next month she had another long seizure that made her have to be intubated for a day. Her Freshman year, Angel went to high school for 3 months, caught mononucleosis and couldn't recover from it. After 7 months of specialists, tests and being told that she probably has leukemia or lupus. But Angel was finally diagnosed with JRA, Juvenile Rheumatoid Arthritis, fibromyalgia, I. B. S., JHS, joint hypermobility syndrome, Bell's Palsy, acid reflux, chronic constipation, chronic urinary tract infections, chronic kidney disease stage 1, and she also developed kidney stones and a cyst on her ovaries. A couple of years ago she fell backwards into her tub while getting undressed, hitting her head on the wall and her spine in the bottom of the tub. Causing multiple injuries including a concussion with 2 bulging disc in her spine. She also has been diagnosed with clinical depression, anxiety and OCD, obsessive compulsive disorder, and sees a Psychologist weekly and Psychiatrist monthly. The loss of both grandfather's, grandmother and her cousin who was also her Godfather in the same year sent her spiraling into a deep depression. Especially since my Dad moved in with us when my step-mother's cancer put her in hospice. My Dad had diabetes, heart disease and hypertension. We took care of him until he had three strokes and I couldn't physically lift him. We were forced to put him in a facility which was heartbreaking. After work every day we went to visit him. His passing broke our hearts and tore our family apart. This year 2016, Angel was diagnosed with Myasthenia Gravis. Which is an autoimmune disorder that causes muscles to weaken easily. In M. G. the immune system attacks the receptors used for muscle contraction. This disease coupled with the flare of her Rheumatoid Arthritis and Fibromyalgia has confined her almost completely to her wheelchair. Adding insult to injury, both her ANA and DNA test have just come back positive for Lupus. 

So with all she goes through she sees different specialists, does therapies, has procedures everyday or almost everyday and we have to travel by wheelchair transportation. as she has a tilt-in-space wheelchair. On top of that she has a 2 1/2 page medicine list where she takes almost 30 of those medicines daily, does a weekly chemo shot, & monthly infusions for her rheumatoid arthritis, and every few months she does a 5 round dose of Iron IV. She also has about 15 medicines for as needed things like nausea, migraines, etc. So her medical costs are through the roof making it hard to keep up with bills, daily needs, and and just treating her to fun/special things. 

So please, if you can, donate towards helping Angel be the best warrior princess she can be! No aomount is too small, we greatly appreciate everything you can give and share this fundraiser as much as you can whether or not you can donate. The money will go towards medical bills, copays for doctors and prescriptions, everyday necseities,  and things to help her feel like a "normal" young adult like her friends, like educational needs, being able to pay for wheelchair transportation for her to go have fun with her friends and other things like that.

Thank you, 
Angel's mom

P.S. Here's the link to her support page on FaceBook if you'd like to follow her medical and person journey.
https://www.facebook.com/angeltheautoimmuneprincess/?ref=aymt_homepage_panel