HELP LULING BOY FIGHT RARE ILLNESS

Grant Rechen is a 14-year-old boy from Luling Louisiana who was diagnosed with a rare illness called vein of Galen malformation when he was only three months old. The disease is a large mass in the brain that steals blood flow from the body to feed itself and continues to grow. Most afflicted children do not live long enough to even receive the diagnosis dying of heart failure due to a hole that forms in the heart because of the disease. Since his birth, Grant has continued to battle this disease. He has undergone 16 surgeries, suffered two small strokes and both of his jugular veins have collapsed . He is one of two in the world with bilateral collapsed jugular veins and vein of Galen malformation that have survived! He is indeed a FIGHTER and miracle child!The past three years Grant has been in a type of remission.The last surgical procedure in 2017 was scheduled to be the very last experimental treatment for his condition. Recently an MRI revealed that the vein of Galen malformation has begun to progress in size again. Grant will have to return to New York once again and undergo another surgical procedure with world known Neurosurgeons and Neuro Radiologist Alejandro Berenstein MD. Due to the high cost of travel and out-of-state insurance , the financial challenge for the Rechen family is a huge burden. Your support and prayers are greatly appreciated !