My name is Cynthia Enderli and I am a 29 yr old single mom who is in dire need of a kidney transplant. I have ESRD (end stage renal disease) and I do dialysis three times per week.
Being that I am in stage 5 kidney failure and also have Lupus as well as Lupus nephritis (which attacks the kidneys and other organs), this means that my kidney function is at 5%. My body is not responding well to hemodialysis treatments so far. I don’t have an appetite at normal meals and can rarely make it through the day without vomiting, sometimes multiple times. I have to force myself to eat every single day but sometimes my body is too weak to even make an effort. I have lost a total of 30 pounds since starting dialysis back in February 2020. I was never told I had end stage kidney disease despite all of the tests that were being run month after month. I was approached by my rheumatologist back in August 2019 about getting a kidney biopsy done but the results only showed minimal scarring. At least that’s what my team of doctors told my family. I could have saved my kidneys or at least tried to slow the progression of my kidney disease if I would have been given a warning. No doctor ever explained anything to me or let me know that I had advanced kidney disease. They only pushed more and more medications on me. Even medications that were dangerous for kidney disease patients to take. It was as if they were trying to experiment on me or even worse, kill me. After the kidney biopsy my rheumatologist at the time suggested that I try chemotherapy to save my kidneys from being destroyed by the Lupus nephritis. I trusted her to know what she was doing and talking about but little did I know that chemo would just make everything much worse. I did three chemo treatments total and by the end of it my body was so badly poisoned by the toxic waste my kidneys couldn’t get rid of but, also by the chemo medication. In December of 2019 I suffered from a stroke and seizures that landed me in the ICU. I had to be put on life support while I was in a coma fighting for my life. My family was devastated, shocked, and confused as to why all of this was happening to me.
The team of doctors who were taking care of me when I arrived in the ICU that day, they had to break the news to my mother that I possibly would end up brain dead. They weren’t even sure if I was going to make it. This news horrified and shook my mother to her core. She couldn’t believe that her baby was in a hospital bed on life support, fighting for her life, and even worse of all, possibly end up brain dead. Her first thought was, “what will I tell my granddaughter and how will we both overcome this tragedy.” Thank God that he had other plans for me and my family because after three days of being unconscious, I woke up. I remember being very confused and unable to speak to anyone since I had tubes running down my throat. Everyone in the room just stared at me in awe, as if a miraculous event had just happened, and it did. After medical professionals had informed my family that I probably would never be the same again, there I was. I was able to communicate with my mom and asked her for pen and paper. There were tears of joy all around the room as they watched me use my hands to write in order to communicate my thoughts. Since that terrifying incident happened, I have been in and out of hospitals every single month. For over one entire year I had to struggle and push myself to keep going despite feeling like I wanted to give up because I was tired of suffering.
I remember asking my mom many times to allow me to just let my body give up.
I wept and said to my mother, “I can’t do this anymore, I just want to die.” But my mom didn’t let me do such a thing and reminded me to keep pushing for my daughter. I started dialysis in February of 2020 and I was unstable for a long time after that. Covid-19 has made it even tougher for me to get by. I can barely ever leave the house except for doctor appointments and or emergencies. Obtaining a job would put my life in jeopardy since I have no idea how my body would react if I were to catch the virus.
I depend on my mom and stepdad to help me pay for bills and to take care of my daughter.
I am not a US citizen so that means I don’t qualify for any government assistance.
I was devastated when my renal doctor at my dialysis center told me that he couldn’t add me to the transplant list because I didn’t have medical insurance. Recently I was able to find an insurance plan through Blue Cross Blue Shield but that is an added expense piled on top of the rest of my many expenses.
I’m in the process of trying to get added to the
transplant list but can’t afford to keep paying for my insurance without a job or income.
My mother can’t work either because she has to take care of me and my daughter.
We try our best to make a living by selling baked goods, doing clothing alterations, and selling face coverings made by my mom.
We know that we can’t give up because my life depends on it and my daughter needs her mother more than anything in this world.
My death would change my daughter’s life forever and impact her future in a very negative way. No child deserves to suffer from the trauma of seeing their mother fight for her life every single day, only to end up losing the fight because she doesn’t have the paperwork to prove that she is a citizen of a country where she was practically born. My parents brought me to this country when I was only 3 years old and because of that I was able to apply for DACA. Having the ability and permission to work legally in this country doesn’t change the fact that I physically am unable to work.
If you are reading this, I plead you to put yourself in my shoes. What would you do if you had a small child who depends on you for everything? What would you do if your only option left was to beg for help? Would you give up and abandon your child? Or would you fight with every ounce left in you, no matter what you had to do, even beg...?! Please consider making a huge difference in somebody’s life and possibly saving a mother and her child.
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Thank you and God bless.
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