This is my story and how this website began its creation and journey: I have chronic excruciating pain in my pelvis. It took about 3 years to get a diagnosis of Pudendal Neuralgia. 

It started while I was pregnant with my second child at the age of 35. I have severe pelvic pain during the whole pregnancy. I was in constant physical therapy so I could keep walking and working. Then the pelvic pain started getting worse again after the birth. 

One doctor found one spot that was most likely endometriosis and it was burned off my uterus. A week later, I had a hysterectomy done at age 37 because at the time it was our biggest lead that we found that could be causing this pelvic pain. I had 5 weeks off from work and rested a lot. When I went back to work, I was finding myself not being able to sit and I would leave work crying because of the pain I was in.  Finally, I went to my primary doctor and cried to her that I couldn’t think anymore, I couldn’t finish sentences, and I would repeat questions because my pain was so excruciating and consuming. I started disability through the employer I had (which they later terminated my employment based off health issues). I tried to come back to work part time, but my employer made it very clear they needed a full time employee. They also said I could come back when my health issues got better and this reflected nothing of my performance! It was so hard because I loved my job and I was damn good at it. I felt proud to have been in that job because I was the only woman in my team of men; and unfortunately I haven’t gone to work since. It was a Uro-gynecologist that diagnosed me with Pudendal Neuralgia, and she could only refer to a pain clinic. 

I struggled because in a short amount of time I had lost my job, had to sell our home, plus all the things I couldn't do as a mom or wife anymore! The only real helpful source of information was from a Facebook group called Pudendal Neuralgia Hope. The group was beginning to be too big and a lot of the same questions would be asked or answers being lost in huge threads, which made the site nonproductive. So I used my skills to design this website and it can be used by anyone that has a pelvic pain diagnosis or anyone who supports someone with pelvic pain and they need to seek out more information.

I am very passionate and dedicated. I feel I was given this nerve damage/pelvic condition for a reason. That reason is to make it better for others to find resources. This website will impact thousands of people worldwide.

The website will allow anyone who is willing to pay a super low monthly fee (this would help secure the website and also keep people from creating false information). Once logged in, you can create and/or search for resources that will be public to anyone logged in for others to find a doctor, or physical therapist, pain clinic, diagnosis, procedure or different types of surgeries. Once a resource is created, a pinpoint will be created. The pinpoint will include any contact information and also makes it able for one to search for a specific city, zipcode, or multiple countries. There will be hyperlinks gathered in the resource and then there would be a message board created so people can have conversations about a specific doctor, surgery, or any of the other resources. It is organized in a way that people don't lose valuable information in a comment. 

There will also be a similar part where there is lists of products that have been helpful, and a medicine page so people can communicate in message board rooms with each other on what has worked for them or others that didn't. The message boards will allow people, patients and spouses to support each other, and share information. There will also be another place where people can find companionship- whether romantic, or a roommate, or just a friend to have that is close to you and they can grow a support system that is local to the patient. 

When someone feels close to suicide, we can help prevent this from happening because they would be able to help find resources, help and support for faster! One of the best people for a pelvic pain patient to communicate with is another person with pelvic pain, chronic pain, or specific diagnosis’ because no one else can really know or understand what pelvic pain hell is like. Maybe, just maybe that will keep those angels on earth a little longer before they go to God.

Building a website like this can get complicated and expensive because there are so many aspects of putting this type of project together. I'll need to hire a lawyer for a disclaimer, I've had to my own LLC license, a tax expert, developers, project manager. I have saved a lot of money that would go along with this type of project because I have been creating all the wire frames, writing out logic in a statement of work, and also not having to put a project manager in their company because I can work directly with a developer and test everything myself too. There are just some complexities where I just need a straight coder.

I want there to be a place where people can donate on the website as well and we can put this money towards helping others that need some help with healthcare financial costs.


Please help me raise this money to complete this project. I would be so thankful! Even if everyone just donated $5-10, it would be amazing. I would like to raise at least half in the next month. The sooner we raise enough money; the sooner we can find resources for either ourselves or our loved ones. 

Thank you so much!!!!!!!!