Lindsey's Fight Against Lyme

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$2,350 raised of $20K

Lindsey's Fight Against Lyme

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Hi Everyone!  My name is Lindsey.

First off, I want to say thank you for taking the time to visit this page. I never thought that I’d be speaking about this publicly, let alone asking for help. 
 
My Story: 

Over two years ago I started experiencing some very bizarre symptoms— migraines, dizziness, extreme fatigue, joint pain, hair loss, tingling and numbness in my legs and a variety of other weird neurological symptoms. After months of trying to keep it together, my body could no longer do what I asked it to do. I became so physically sick, unbearable body pain, I was drained I had to quit my job, I moved back home with family to help take care of me. I thank God for giving me the most wonderful family I couldn't have gone through the last two years without my family. Thank you for all your love and support.

Since April 2015, I have been to countless physicians and specialists with my mom by my side.  All of them missed my illness. They diagnosed me with chronic fatigue syndrome, autoimmune disorder, Fibromyalgia. The Doctor in the hospital told me my symptoms were psychosomatic and I was suffering from severe anxiety and panic disorder and creating symptoms in my head he even asked if I needed to go to a psychic ward. I was shuffled from doctor to doctor for 12 months taking numerous medications that did not work with no explanation as to what was causing my symptoms. They would say to me, “Your test results are normal.
Not normal to have suicidal thoughts, pain all over my body that ice to heat wont penetrate to the pain, I'm shocked body pain doesn't show from the outside.  Not normal for a 30 year old to being going to a physical therapy and having chiropractic visits every other day. My life has been a full time job these last two years just trying to it though other day.

Sometimes I'm angry at the fact I don't look sick. The only thing that gives it away is my pic line.

After countless, costly and out of pocket lab tests, I was finally given an answer. That answer was Lyme Disease. I was relieved is there a pill I can take and put this behind me. Its more complicated than that. Like most people, I didn’t know much about the disease except that it is transmitted by a tick. I had no recollection of being bit by a tick which made diagnosing me that much harder.

The longer the bacteria stays in your system the more widespread it becomes. It burrows into your tissues, cells, organs and attacks every part of the body. The longer Lyme is untreated the more chronic it becomes. My Lyme decided to primarily attack my neck, shoulders, and legs. I thought I was dying and going to lose the ability to walk. I don't know how I got through some nights.  

 From Google Patients spend an average of $53,000 per year out of pocket for tests, doctor visits, pharmaceuticals and supplements. My insurance does not cover any treatment plan for Lyme.

My last treatment at Kotsanis Institute in Grapevine Texas was Monday-Friday most days were up to 8 hours.  I have to say thank you Dr K for finding out what my poor body was going thru. He found Lyme, Mold, Parasites, Heavy metal poisoning , and found out my inflammation was 3x than it should be.

 Funding this treatment has wreaked havoc on myself financially (not to mention emotionally). My last Treatment was $15,000. I am on medical leave from the airlines. I'm not working currently just trying to get through my days.

This disease has the ability to make me bedridden for the rest of my life if not treated aggressively. I am seeking your help to raise funds for treatment at Envita Medical Center Arizona.  I re-located to AZ for a more affordable treatment. The doctor quoted me $20,000 to $60,000 I will be starting treatment next week, we are still waiting on DNA testing. I'm praying its not twelve weeks of treatment like he thinks.




Treatments and Cost 

-Daily access to the treating doctor and nursing staff

-IV antibiotics and detoxification infusions 

-High quality supplements 

-Blood work, testing and labs 

-Doctor consultations 

Luckily, this Lyme clinic is awesome.  It’s unfortunate that treatment for my disease and co-infections is extremely costly. I have no idea how long I will need to be there or how quickly my body will respond to treatment. 

  I thank you for reading my story and hope you will pass it along for awareness and education of this disease.  If anyone is struggling with the same symptoms please get tested for Lyme and test again. 

I don't understand why this is happening to me but I know God has a amazing plan for me. 

I need love and support from everyone at this scary point in my life, I would love even a encouraging letter in the mail.
Thank you for your time in reading and sharing my story! 


Much love, 
Lindsey Smith 

















Organizer

Lindsey Smith
Organizer
Tempe, AZ
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