Ty Hafan rainbow run tredegar
Donation protected
Hi all ,
I'm doing a 5km rainbow run in tredegar to raise money for Ty Hafan .
Ty Hafan provides services to children living with life long illnesses, for example weekend breaks at there amazing hospice , short breaks away , days out for mums and dads , sibling days and so much more .
My son Aaron was diagnosed with duchenne muscular dystrophy at just 6 weeks old .
Duchenne muscular dystrophy is caused by a defective gene for dystrophin (a protein in the muscles). However, it often occurs in people without a known family history of the condition.
Symptoms usually appear before age 6 and may appear as early as infancy.
They may include:
Fatigue
Learning difficulties (the IQ can be below 75)
Intellectual disability (possible, but does not get worse over time)
Muscle weakness:
Begins in the legs and pelvis, but also occurs less severely in the arms, neck, and other areas of the body
Problems with motor skills (running, hopping, jumping)
Frequent falls
Trouble getting up from a lying position or climbing stairs
Weakness quickly gets worse
Progressive difficulty walking:
Ability to walk may be lost by age 12, and the child will have to use a wheelchair
Breathing difficulties and heart disease usually start by age 20.
Ty Hafan do such a good job at supporting me and my family , to be able to give something back will be amazing .
I'm doing a 5km rainbow run in tredegar to raise money for Ty Hafan .
Ty Hafan provides services to children living with life long illnesses, for example weekend breaks at there amazing hospice , short breaks away , days out for mums and dads , sibling days and so much more .
My son Aaron was diagnosed with duchenne muscular dystrophy at just 6 weeks old .
Duchenne muscular dystrophy is caused by a defective gene for dystrophin (a protein in the muscles). However, it often occurs in people without a known family history of the condition.
Symptoms usually appear before age 6 and may appear as early as infancy.
They may include:
Fatigue
Learning difficulties (the IQ can be below 75)
Intellectual disability (possible, but does not get worse over time)
Muscle weakness:
Begins in the legs and pelvis, but also occurs less severely in the arms, neck, and other areas of the body
Problems with motor skills (running, hopping, jumping)
Frequent falls
Trouble getting up from a lying position or climbing stairs
Weakness quickly gets worse
Progressive difficulty walking:
Ability to walk may be lost by age 12, and the child will have to use a wheelchair
Breathing difficulties and heart disease usually start by age 20.
Ty Hafan do such a good job at supporting me and my family , to be able to give something back will be amazing .
Organiser
Cat Morris
Organiser