Please Donations & prayers for Madilyn Summer Rose

Madilyn Summer Rose...this is the most difficult post I've ever decided to write. I have taken Madilyn for second opinions in Johnson City. Her prognoisis hasnt changed... Due to Madi's tramatic birth injury....she was hypocix which is a fancy word for oxygen deprived...because of the lack of oxygen Madi had brain bleeds of 3 and 4...4 being the worst you could possiably ever have...the blood has diconnected Madilyns upper brain from her brain stem....Madilyn is slowly loosing her abilities to suck eat ect...as her newborn reflexes leave so does Madilyn...she doesnt smile, laugh or play....SHE NEVER HAS....now she she will be getting a GJ tube...this is a feeding tube that runs directly into her intestions...she will not survive the 2 surgeries needed to keep it a G tube which runs into her stomach and stop the severe acid refulx she has...I have decided to keep my daughter as freaken comfortable as she possiably can. Her prognoisis isnt promising at all...so with that being said...I have made some other very seriouse decisions about what happens when she dies....Madilyn has not fought this long stayed alive this long for nothing...she will be an organ donor and help someone not go through the hell we have...yes Jesus can still heal but there are many ways my Father works...please be kind...I dont have family I talk to on a regular basis...you guys are the only ones...please keep Me and her brother and sisters in your prayers because this is the single hardest season of our lives!

Donations

  • Kimberly Bailey 
    • $20 
    • 4 d
  • Anonymous 
    • $20 
    • 6 d

Organizer

Nancy Egeland 
Organizer
Hixson, TN
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