Save a body. Help a heart. Please read my story.

My name is Jessica nicole. I've lived with horrible heart disease my whole life. I was born with a disease called hypertrophic cardiomyopathy. A condition in which the heart muscle becomes abnormally thick. Hypertrophic cardiomyopathy makes it hard for the heart to pump blood. It often goes undiagnosed for myself it was found when I was about 7 or 8 at first I had a sharp pain and pinching feeling that I noticed when I would breathe it can cause shortness of breath, chest pain, or abnormal heart rhythms (arrhythmias) and all symptoms came on pretty fast. I was taken to the hospital where they diagnosed me with the disease. My mother had the disease it was hereditary and passed on from her to myself unfortunately. The disease wasn't as bad as what came after, from the time I was 7 to 14 I was implanted with 3 different pacemaker defibrillators. The first two years were good then the battery on the device started to get lower and drained. I was brought to a electrophysiologist a person who can interrogate the device. The doctor handed me off to a med student and left the room. The medical student started interrogating the device raced my heart up and down. It terrified me. It was like going into cardiac arrest when he would race it. Really he was putting me into vfib which was right before cardiac arrest, then he would slow it down in the 40s. It felt like hard pressure and everything around me was slowed down. I started to sweat and cry I couldn't breathe. The doctor came back and he asked me what's wrong and I said I didnt like feeling like that. What's wrong with them? I was thinking. He said those tests were normal but what the little devil didnt say was it could worsen the condition I have. That doing that actually makes your heart worse and makes You more proned to having rhythmarrhythmias Which will put you into Vfib and then cardiac arrest. It felt like death was coming. I've beaten the reaper many times more then a cat and the 9 lifes they supposably have to live. The doctor told me and family That the device will need to be changed soon. Within a few months. My father and I leave from that appointment and from there on I fell into a black hole. I can not tell you how many times I was in and out of the hospital with vfib. Not even a month later I was laying on my father's bed. I was very scared to sleep alone and all the sudden my body jolts, leaping me off his bed. I was very dazed on what happened I just knew it was SO painful. The device was Inappropriately shocking me. It was reading the top ventricle instead of the bottle and thought I was going into VFib and cardiac arrest. It shocked me 38 more times while I was awake. I was tortured for hours, flown in two flight for life helicopters to two different e.r's none knew how to suspend the device at the first hospital. Finally relief was given to me when I was given a Medtronic's magnet to suspend the device at the 2nd hospital. So now the battery was differently depleted. The second one they put in lasted a good year and a half before that one shocked me. I took that magnet EVERYWHERE it was my security blanket I was so sacred without it but some bullies threw it in a porta potty my dad had to grab a metal poll and fish it out. I was so embarrassed not for myself but that these kids didn't understand why I needed it so bad. It was in school so they got in trouble a lot for that after that I didn't want to carry it around. I haven't been shocked this seemed alright but again I was wrong. I ended up going to six flags with my best friend and her family. It was hot and sunny but it was fine. We get to the kiddy land and I ride a small ride with my friends little sister and I get off and start feeling funny. I was being shocked again. I dropped to the ground. The device kept going as I laid on the ground I was screaming for a magnet. I needed my magnet so bad.. I was so scared and embarrassed my friend and her family had to watch me in agony and had no way to help. Someone dropped a magnet on me at the time and I immediately put it over the device to suspended it. No more shocks. I was brought to the hospital again and the shocks depleted the battery so the last and 3rd device was implanted. My father and I refused to let them implant something that was going to shock me. They told my father I needed this ICD and if he didnt sign the paper they would go to a judge and get the yes from them. The group of doctors came back in after hours of going back and forth this time they told us there was a new device on the market that wouldn't shock me it would simply pace me out of the rythm. So we agreed. I wake up from the surgery and 30 minutes later I'm shocked 3 more times while my granny was holding my hand. So she was also shocked. I scream at the doctor saying he lied to me. That night my father and I were kicked out of the hospital because some doctor confidentially/Trust was broken. That was in Chicago so we went to children's in Milwaukee and they agreed to take the ICD out but it was already to late I was dying. I went to a hospital we already knew of from my many hospitalizations there over the years lutheran general in Illinois. At that point from all the shocks over the years and my heart going into vfib it was giving up on me I was dying like I said. The ICD did save my life once something I didnt mention the 2ed ICD shocked me while I did had a heart attack. I passed out in the middle of the road it was the first year I had it. For that I will always be grateful. At Lutheran general they called my friends and family in and put me on a high dose of morphine. My doctors and father both tried so hard to find a place that could help me and they struck gold when they called Children's hospital of Pittsburgh Pennsylvania they had a device called a By-vad. Which acted like a heart. It would supply the blood through your body and pump the heart until you were able to be transplanted which in my case by this time I was 14. I was put on the top of the list and had my transplant within the first 7 months of being there. While I was waiting yes I was on the by-vad for the 7 months and it was a 600 pound device. It took 4 nurses to move it. I was transplanted and returned home. I'm 27 now and I need another heart. It's very serious. I have coronary artery disease and two stents placed and congestive heart failure and diabetes among other things. I am being evaluated at UW Madison and I am so very close to completing all the test and seeing all the doctors I need to see. I started being evaluated at two other hospitals but started following with UW Madison and I fell in love with everyone I've seen and met. I have many a handful of things left to do for them to tell me yes or no and trust me it was not EASY getting this far. I had over 36 appointments last week where I had to pay for a motel to stay in Madison for those tests and procedures since I'm from zion IL. My boyfriend drives me 2 hours to get to Madison. The week before that we had to stay two nights. One of the things I have to do is have good finances they want me to save up at least $3000 because my boyfriend will be needing to stay in a hotel while I'm at the hospital right after the surgery. I'll be in the hospital at least from 2 weeks to 3 weeks they said and then after that it's another 2 to 4 weeks we have to stay at least 30 Minutes locally. Travis my boyfriend quit his job to be with me and be my caregiver after the transplant. We do uber eats and I get 700 from my mother passing away but a good chunk of that is gone for rent and lots of Bills. I thought maybe making one of these apps or sites could help. If anyone could help us. Please 1 dollar. 50 cents anything will help. Maybe someone will come across that that knows how to make a fundraiser that could help me. I have 300 in my bank right now and two of that goes to rent and 300 in saving. If you cant help with money please just reach out to me and talk. Any help or support will make my day better. Thank you for reading this or half of it. Whatever brought you to my page I appreciate you taking the time. -Jess. Stay safe.