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"There are moments that mark your life. Moments when you realize nothing will ever be the same and time is divided into two parts before this and after this..."
On May 7, 2013 Isabella had her first grand mal (tonic clonic) seizure. She was four and a half years old.
That day marked the beginning of the nightmare that continues to this day.
She was taken to the emergency room for testing, which included CT scan, EEG and various blood tests. All of her tests came back fine, and her neurologist, who wasn't familiar with seizure disorders, suggested putting Isabella on Keppra for the next two years. Since Her mother had never dealt with seizures before, and was unfamiliar with the medication, she wanted to research other, safer options first. The neurologist agreed, and Isabella was sent home the following day with the hope that this was just a one-time occurrence.
Unfortunately, that seizure was only the beginning of what was to come.....Within 2 weeks of that first seizure, Isabella went from being a perfectly healthy, intelligent, independent and full of energy little girl to having hundreds of different seizure types a day; seizures that took away her independence and her beautiful personality. In June 2013, Isabella's parents took her to NYU for a second opinion, and she was diagnosed with Myoclonic Astatic Epilepsy (Doose Syndrome).
Isabella has been through many different treatments and therapy programs over the past three years. She's seen many different doctors and specialists. Sadly, her seizures still persist...
One can only imagine how difficult this is on Isabella and her entire family unit.
Isabella's mother can not work because Isabella requires 24 hour care. In turn her father must work two jobs to keep up with the support of his family and the monstrous medical expenses to help his daughter. It has become quite a financial strain and they need help.
Despite having great medical insurance, there are so many expenses that insurance doesn't cover despite being a necessity. "Seizure-proofing" your home, medical equipment, therapy equipment, many of the therapies
that aren't "conventional" yet hold so much promise.
Currently Isabella's parents have an opportunity to try a new therapy which holds great promise!
Again, it is not covered by medical insurance and they need help.
We understand that times are hard for many, but humbly ask if there is anything you can offer to please consider helping this sweet little girl? We greatly appreciate the prayers and support!
Thank you for taking the time to read Isabella's story. ❤️
This was taken the day of her first seizure
On May 7, 2013 Isabella had her first grand mal (tonic clonic) seizure. She was four and a half years old.
That day marked the beginning of the nightmare that continues to this day.
She was taken to the emergency room for testing, which included CT scan, EEG and various blood tests. All of her tests came back fine, and her neurologist, who wasn't familiar with seizure disorders, suggested putting Isabella on Keppra for the next two years. Since Her mother had never dealt with seizures before, and was unfamiliar with the medication, she wanted to research other, safer options first. The neurologist agreed, and Isabella was sent home the following day with the hope that this was just a one-time occurrence.
Unfortunately, that seizure was only the beginning of what was to come.....Within 2 weeks of that first seizure, Isabella went from being a perfectly healthy, intelligent, independent and full of energy little girl to having hundreds of different seizure types a day; seizures that took away her independence and her beautiful personality. In June 2013, Isabella's parents took her to NYU for a second opinion, and she was diagnosed with Myoclonic Astatic Epilepsy (Doose Syndrome).
Isabella has been through many different treatments and therapy programs over the past three years. She's seen many different doctors and specialists. Sadly, her seizures still persist...
One can only imagine how difficult this is on Isabella and her entire family unit.
Isabella's mother can not work because Isabella requires 24 hour care. In turn her father must work two jobs to keep up with the support of his family and the monstrous medical expenses to help his daughter. It has become quite a financial strain and they need help.
Despite having great medical insurance, there are so many expenses that insurance doesn't cover despite being a necessity. "Seizure-proofing" your home, medical equipment, therapy equipment, many of the therapies
that aren't "conventional" yet hold so much promise.
Currently Isabella's parents have an opportunity to try a new therapy which holds great promise!
Again, it is not covered by medical insurance and they need help.
We understand that times are hard for many, but humbly ask if there is anything you can offer to please consider helping this sweet little girl? We greatly appreciate the prayers and support!
Thank you for taking the time to read Isabella's story. ❤️
This was taken the day of her first seizure
Organizer and beneficiary
Steve Filan
Beneficiary