Help us help our baby girl

Hi I’m Hannah a mum of a beautiful baby girl Billie born on the 07/11/2024 into our family that instantly fell head over heels. She was simply perfect in every way.

on the 15/09/2024 I took Billie to the GP with a high temperature and generally unwell and was told that it was viral and to wait it out.

by the morning of the 17th I knew something wasn’t right and decided to take her straight to a&e where she was admitted with a suspected uti.

Over the next few days an abundance of tests were done but our baby girl just got worse, her temperature was out of control and her tiny little body swelled so much she was unrecognisable.

on the 19th a specialist heamotolagst was called in and had a bone marrow sample taken.

that night our whole world was turned upside down.

Billie had been diagnosed with HLH (Hemophagocytic lymphohistiocytosis (HLH) is a rare, severe, and life-threatening hyperinflammatory syndrome caused by an overactive immune system, leading to uncontrolled inflammation, tissue damage, and organ failure).

Billies treatment started straight away to get the HLH under control whilst further tests were completed.

Tests have shown that Billies HLH is genetic so along side chemotherapy and other therapy’s Billie is going to require a bone marrow transplant.

As you can imagine this has come as a huge shock and both myself and Ben will be with out an income.

sadly Ben lost his mum in may to pancreatic cancer and took his sick leave to be with his mum in her final months meaning his his sick will be limited and as for me I hadn’t yet returned to work from maternity meaning my income has dropped to 0.

we have been told that this whole process will take at least a year meaning financially we are going to take a huge hit whilst still having to cover our mortgage, bills and other expenses for billies journey.

Billie will be going to Newcastle for her transplant and we have been told the stay can be between 1-3months which is going to be an added expense on top of everything else.

Also as a result of Billies transplant it will damage her ovary’s effecting her future fertility. As she is to young to go through the process of egg collection they will be removing one of her ovaries so we can attempt to preserve it for her but as you can imagine that’s not guaranteed so we would like to put money away for her so if she requires a surface in the future to have children she will be able to access the funds for that.

never in a million years did we ever expect to be in this position and even putting this fundraiser out is very difficult for us and quite frankly hurts our pride but at this stage we will do anything for our baby to make sure she recovers and we get our perfect little daughter back.

thank you for reading our story and even if you can’t donate love and prayers for our baby are more than enough and so so appreciated.

lots of love Billie and her mummy and daddy xxxx

If their is any left over funds we will be donating them to Noah’s ark children’s hospital and the charity Latch who help families like our selfs through these horrifically challenging times.