- J
- S
Hey Everyone,
For those of you who know me, you know my partner David has ALS, Lou Gehrig’s disease. He was diagnosed seven years ago, this coming October 2nd. He had also been dealing with symptoms one year prior. Since the average lifespan is 2 1/2 years from diagnosis to death, we feel lucky that he’s going on eight years.
ALS is one of the most horrific illnesses out there. Every day since David has been diagnosed with the disease he loses a little bit of himself and his independence. There is very little financial support and guidance for those suffering with this disease. One of David’s dying wishes was to be in Florida, a state that he absolutely loves. We moved to North Lauderdale three months ago.
We have found the medical community down here much more supportive and helpful. We have honestly felt like we have been flying blind for 7 1/2 years.
At this time, David’s $30,000 wheelchair is failing him… The cushions have given out causing him to have pressure sores and constant pain, his arms slide off the arm rests, causing him to stop every few minutes, he slides forward and side to side constantly. Since he lives his life in the wheelchair it is important that it supports his weight and allows him comfort. He should still be able to maneuver for as long as he can maintain his independence. Insurance is not going to cover the full cost of what needs to be done to the wheelchair to allow him the most basic comfort levels while trying to maintain his life in the wheelchair.
Since I am his main caregiver I can only teach a few classes and run my dance studio, which of course has been affected by COVID-19.
I’m looking to my friends and my community for help in raising funds to update his chair. All I want is him to have a comfortable existence.
What I am asking is if everyone donates the price of a coffee and donut .... just $5
But anything you can do would be appreciated more than you would know.
Thanks to our Friends and community we have reached our original goal for the upgrades to David’s wheelchair.
Thank you all so much for your help. Anything above and beyond will go towards all the other medical expenses that we occur that insurance will not cover. The average expenses for families with someone diagnosed with ALS is about $250,000 a year. So getting support from you all is wonderful!
Thank you for taking time to read this.
Bryan

