Amara's Gift

Amara Tegan Micah Behr is 30 weeks as still kicking and living inside me. On March 9th my husband and I found out that she has Trisomy 18, a fatal genetic condition that will inevitably one day take her life and with it a part of ours.

I have known Trisomy 18 most of my life as I lost my youngest sister to T.18 when I was 9 years old. T.18 babies may not live through to birth, those that do may only live hours, days, weeks or in some cases months.

My sweet sister lived 72 days and every one of them was filled with the love of her family. Some T.18 children can be so lucky to live to see their first birthday and some possibly even into early childhood but due to the nature of Trisomy 18 a long life is not a possibility as there is no cure.

Although I was given the choice whether or not to continue the pregnancy for us it was no choice. We knew we would ensure, as her parents, that Amara lived every day of this life she has been given and it would not be by any choice of ours to end it for her. She is alive now, today and really this is all any of us are granted. Each day is a gift and We are grateful each day we have with her.

We are planning for her birth and hoping that we may be among the lucky few who are able to take their baby home to cherish what time we do have with her, to show her a life full of love eith her family. We simply ask for your compassion, your hope and understanding. Have gratitude for every day.

I have set up this campaign to help raise money for Amara. All proceeds will go to cover expenses and medical needs to help Amara live the fullest life she can. All additional funds raised will be donated to Northern Health British Columbia to go towards pre and post natal care to help those families in need and to help care for all children especially those in remote areas. 

Please donate and help us give Amara a life full of love. Help us help other families in need.