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Welcome to Coopers Page.
Follow our journey on Facebook -What about Cooper
Hi my name is Eric Young. My wife Hazel and I have one child by the name of Cooper. Cooper has a mutation to a gene in his brain and suffers from the most severe and incurable form of epilepsy called Dravet Syndrome. He's had months with over 8000 seizures and days with over a thousand. His story is below. Please read it to understand what he and our family go through on a daily basis. Cooper will live with this condition his entire life. So the journey is endless.
This gofundme account was setup to help us get through the rough periods of medical treatments and also to help us get some much needed medical equipment for the house that we can't afford at this time. We need to get a portable oxygen machine, bedtime monitor that will allow us to view and monitor his nighttime seizure activity, a unit to check his blood pressure and oxygen levels and a better grade thermometer along with a blood sugar testing machine. Both my wife and I work full time jobs but have not been able to keep up with the onslaught of medical bills to get the essentials we need to help treat Cooper. In the last three years we could've bought 3 new cars with the amount we paid after medical insurance paid there portion. We also have to pay for a helper to watch our son due to this because we don't qualify for state assistance because we both work to support Cooper.
Thank you to everyone that has helped our family in the past and has continued to help or is able to help. My wife and I have always worked hard for what we own and always been the first ones to help friends and family. We have never asked for help but have been pushed into a corner and we want to thank everyone in advance. God bless everyone for praying and keeping Our family in your thoughts and prayers.
Coopers Journey with Dravet:
Cooper had his first seizure at the age of four months. This seizure lasted 30+ minutes. As time passed Coopers seizures started out as mild and has advanced to the severe side of the spectrum. Dravet is not treatable with medicines even though he's on three anti seizure medicines. Over the last 3 years he has been in the hospital over 100 times with the ambulance at our house non stop. He's had more needles in him and tests taken that anyone could imagine. He's not your normal three year old.
Anything from excitement, temperature changes, taking a bath, lack of sleep, too much exercise can trigger a seizure. For a 3 year old that means he has seizures all the time. He doesn't get to enjoy life like most kids his age. He is stuck in the house with the blinds closed all the time and gets timeout for playing too hard to try and teach him early to relax. This is my way for us to help prevent seizures.
As the syndrome has progressed he went from 1 grand mal seizure a week in which the neurologist said was too much to days with over 8 of them. This is taking a toll on his body and we're looking into therapy for his body and also with development to keep him advancing. He's goes into the hospital to start a special diet in May 2016 to see if this will assist with his seizures.
As a family we haven't been able to go to dinner, hang out with family or friends. Coopers birthday parties have been simple if not cancelled due to his health. We miss holidays with family because the excitement causes a seizure within the first 10-15 minutes. Our vacations are spent in the hospital and we live in fear of when's the next seizure going to happen and is he going to be ok after. It's a battle but as long as he's alive we will put everything aside to make sure his health is priority.
Please follow and share our sons Facebook page ". WHAT ABOUT COOOER. "
Please take a minute and read about epilepsy or go to www.dravetfoundation.org to read about his syndrome. Scary stuff but he's a tough kid and battles everyday to fight this battle.
COOPER IS OUR DRAVET WARRIOR. GOD BLESS.

This is Cooper a in the ambulance on the way to the hospital. Without medical equipment at home this can take place daily at least weekly for our family.

This is Cooper in the hospital after a rash of seizures we couldn't get to stop.

