24hr EEG for our daughter
Donation protected
Due to complications around the time of her birth, Eliza suffered oxygen deprivation which resulted in Hypoxic Ischemic Encephalopathy level 2. Later, due to global development delays she was diagnosed with Cerebral Palsy and also the diagnosis that we were dreading, Epilepsy.
Eliza had seizures around her birth which were luckily controlled and by age 2 we thought it was something that wasn't going to return, unfortunately we were wrong. Just after her 2nd Birthday she suffered a 40 minute seizure and 10 months after that unfortunately seizures became a regular unwelcome part of her and our lives
The visible seizures that we have to deal with are focal and generalised seizures which always happen at sleep times (going from a light sleep to a heavy sleep and vise versa). If a seizure persists we have to give a rescue medication and call and ambulance in case any further assistance is required to control the seizure, oxygen is needed or help with any secretions Eliza is struggling to control.
We have now trialed two medications and unfortunately her seizures are not fully under control so at this point a longer EEG is needed to access what is happening while she sleeps and if this could be potentially having a further impact on her development not to mention putting her at higher risk of complications of a seizure.
A 24hr EEG already entails a long waiting list but due to current times this will be much much longer. If we were able to fund the procedure privately, then once it is safe to do so, we would be able to get this scan performed much sooner.
We are therefore going to try and raise the money for this procedure and in the future, the many items of equipment Eliza will need to support her independence. We will be looking to do some fund raising events or challenges once we are able to safely do so without putting Eliza at any risk. In the meantime any help would be greatly appreciated to get the ball rolling.
Thank you for reading, stay safe.
Josh Felton (Elizas Dad)
Eliza had seizures around her birth which were luckily controlled and by age 2 we thought it was something that wasn't going to return, unfortunately we were wrong. Just after her 2nd Birthday she suffered a 40 minute seizure and 10 months after that unfortunately seizures became a regular unwelcome part of her and our lives
The visible seizures that we have to deal with are focal and generalised seizures which always happen at sleep times (going from a light sleep to a heavy sleep and vise versa). If a seizure persists we have to give a rescue medication and call and ambulance in case any further assistance is required to control the seizure, oxygen is needed or help with any secretions Eliza is struggling to control.
We have now trialed two medications and unfortunately her seizures are not fully under control so at this point a longer EEG is needed to access what is happening while she sleeps and if this could be potentially having a further impact on her development not to mention putting her at higher risk of complications of a seizure.
A 24hr EEG already entails a long waiting list but due to current times this will be much much longer. If we were able to fund the procedure privately, then once it is safe to do so, we would be able to get this scan performed much sooner.
We are therefore going to try and raise the money for this procedure and in the future, the many items of equipment Eliza will need to support her independence. We will be looking to do some fund raising events or challenges once we are able to safely do so without putting Eliza at any risk. In the meantime any help would be greatly appreciated to get the ball rolling.
Thank you for reading, stay safe.
Josh Felton (Elizas Dad)
Organizer
Joshua Felton
Organizer
