Help support earls medical bills

I was diagnosed with stiff persons syndrome about 8 months ago. Stiff person syndrome is a rare neurologic disorder that causes muscle stiffness and rigidity. There is no cure for this disease. Right now only the medications are helping control this disease untill I find a neurologist that can figure out the medications to allow me to atleast walk with a cane. This disease causes muscle spasms throughout the body. Usually with this disease it affects the lower part of the body and one of the legs, I have it from the neck down. I am on high doses of Valium, muscle relaxers and pain medications. The doctors have been adjusting the dosage of medications to hopefully find something that works. I see a neurologist in June, if he can't help I will have to see someone through DMC or U of M. The other option is johns hopkins in minnasota. They can do other treatments like IVIg therapy and plasma spheres. But I have to have a doctor that knows how to treat this disease first.
This diagnosis he been very hard on me and my family. I am in constant pain, my muscles spasm are all the time, my speech get slurred when my anxiety get bad. I have a hard time with loud noises and large groups. This disease affects most of my body. When the spasms get bad and my speech is slurred I have hard time talking and swallowing. I have to use either two cains or a walker. I have a tendency to fall due to no muscle strength in my legs.
I am doing this to help cover medical expenses, now and future ones. We are getting a lot of bills that are not covered by my medicare or other insurance. Once we get a doctor that knows how to treat this we dont know how much the insurance will cover. Any help is greatly appreciated. I am Hoping once we find a doctor that can treat this disease I will be able to do more. Right now it is very hard to stay out of bed.
We will update when possible. Thank you for taking time to read my story and help out if possible.



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