Help Lana fight SMA TYPE 1 Donation in $AUD

Hi everyone, We are rising money for little Lana to help her on her journey to beat Spinal Muscular Atrophy Type1 Lana is a 7 month old baby today (born November 3, 2019). She was in good health at birth, but at the age of two and a half months her parents noticed that her legs were no longer moving and her arms were weakened. They quickly took her to a doctor and they were then referred to a pediatric neurologist for further testing. Lana remained in the hospital for three weeks. After numerous tests, the doctors established the diagnosis: SPINAL AMYOTROPHY TYPE 1. This is a rare genetic disease that attacks the motor neurons and atrophies the muscles. It gradually prevents you from moving (from head to toe), eating and breathing. There is a new drug that can cure the disease, but it is so expensive that her parents cannot imagine being able to buy it. ZOLGENSMA, the most expensive drug in the world (2.1 million dollars). Medication is not available in Serbia and fundraising is the only way, she needs to receive this treatment ASAP. Her family and friends are trying so hard to organize charity events to collect the money but they are very limited during Corona pandemic. They turn to all kind-hearted people to help them and raise funds for a remedy that will get her out of the clutches of this vicious disease and allow her to play, run and jump with her big brother. Let's give Lana a chance to live a normal life like all other children

Donations

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  • Anonymous Anonymous  
    • $21 
    • 2 d
  • Anonymous 
    • $50 
    • 5 d
  • Arsenije Grubacki 
    • $50 
    • 7 d
  • Anonymous 
    • $50 
    • 7 d
  • Sandra Zvrle 
    • $30 
    • 7 d
See all

Organizer

Maja Milenkovic 
Organizer
Cronulla, NSW
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