Avery was born December 4, 2015. On 12/7 she showed seizure activity. soon after she was diagnosed with CHD-She has a hypo plastic aortic valve and arch(small and underdeveloped), coarc, ASD&VSD(holes in her heart) pda, and LVOTO(obstructed flow of blood through left ventricle) She had surgery 12/15 on many of the defects. She came back on ECMO(life support) to allow her heart to rest/heal. She was in the CICU at Boston children's for 4.5 weeks then was moved to the step down unit. 2/1 she had surgery to place a g tube for feeding. 2/6 she came home with the understanding that more surgery will be needed at some point. Avery thrived at home and almost doubled her weight. 3/31 while battling a cold, Avery had an incident of turning purple and was taken to the ER locally then transferred back to Boston- it was determined her heart was showing signs of needing the 2nd surgery. However, they were unable to do it right away as Avery caught paraflu--she was stable so we went home to give her time to recover. 4/29 she had her next surgery-Ross procedure-to attempt to replace her aortic valve and improve her hearts severe disfunction. While surgery went well due to her heart being very sick she came back on the ECMO machine again. She was struggling to improve and discussion turned to a 3rd surgery(very high risk bc she was so sick) and possibly a transplant. On 5/4--Avery decided she was done with ECMO and her heart function had improved dramatically so surgery was put on hold. she has continued to remain on a ventilator and sedated but has been improving steadily. Avery will likely need a pacemaker and will still need several more surgeries and a possible transplant down the line as she grows. Both of Avery's parents are working hard to pay bills at home as well as lodging, food, and have expenses to be there for their precious little angel. Please donate and help Baby Avery and her parents!