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I didn't know my life would be totally changed when I lost my vision at work, I had an aura following a headache that lasted about 2 months non-stop.  My co-worker demanded that I been seen by a doctor that day. I'm grateful for her... and for the ophthalmologist that treated me and a few days later, he scheduled an MRI. The results came back and he called me in the office to meet with him, i was nervous as to why he didn't tell me i was okay over the phone. He said that they found something and it was probably just scar tissue and had made an appointment with the Chief Neurologist at Brighman and Womans hospital the very next morning. He also said i would to need to get a ride in. I said why? He was very professional and had said that its crazy driving in Boston and he didn't want me to get distracted. So i had asked my mother to drive with me and she had called my dad, they both came with me that morning thank GOD... The Neurologist told me I had a Benign brain tumor with the size of being larger than an egg on my right frontal lobe. He said the sooner the better for removal for it could spread. He scheduled surgery to remove the tumor a few weeks later on March, 14. I was planning on starting a class the day of my surgery and was super excited. 
Orginally the process was to have an MRI machine available in the room during my surgery to make sure they removed it all...  it wasn't. The room was given to someone else. The orginal prognosis was a benign tumor and a three day stay in the hosital with the potential of a short rehab after. 
 The surgery didn't go as planned, as I woke up from the surgery with "stroke" like symptoms. Without the use of my left side, loss of ablility to speak and suffered temporary memory loss, i was horrified, i couldn't talk to express what i was feeling and was pretty much chained to my bed. I was screaming inside as to what had happened to me and why i could't talk, walk or remember anything. 
 After 4 days I was moved to Spaulding Rehabilitation in Charlestown. I woke up after 3 or 4 days of not remebering anything following the next 4 or so days of fogged memory.  I had to regain the use of my left side and speech. I had trouble regaining my speech and retrieving words from my brain, and had to write things down on paper to express what i was trying to say.  This has been physically and emotionally trying. It took about 2 weeks for the movement of my left side to come back and i could walk again without help. I slowly started to remember things. As a friend described my condition "you were there, but nobody was home" was so scary to me. Another friend said when i couldn't talk she didn't know if i had remebered her she said blink if i did. 
A few days after my surgery they told me the tumor was removed and there would be no further treatment. My family was so happy! I couldn't really talk much, but i understood what what going on. 
I thought my two week follow up was with my surgeon but instead at it was Dana Faber to meet my oncologist. I said to myself, why the hell am i here if i don't have cancer!! I was shocked, he told that the patholgoy came back positive for cancer and to follow up with an MRI in a month to make sure the swelling in my brain had gone down, that there might be some part of the tumor left.  i waited the month and when we met again he said there was a part of the tumor was still in my brain. He told me I would have to undergo 5 weeks of radiotherapy for 5 days a week to treat the the part of the tumor that the surgeon couldn't remove and to lower the risk of the brain tumor coming back in the future. Also I will be starting chemotherphy for six months to a year. At the appoitment he told me I would need to see reproductive endocrinologist If I planned to have children in the future. I always wanted to be a mother and this news was devastating. Insurance will not cover this part of my treatment. Cancer treatment can interfer with fertility in many ways, as the medicines and treatment that work to kill cancer cells also affect other cells, organs and homorones in the body that can cause permanent ovairan failure. My goal is to freeze my eggs before I start further treatment so I can hold my dream of being a mother in the furture at a later date. This is a picture before my surgery, there is still about 2 by 2 centimeters  left! Thank you, Much love 

Organizer

Alison Brachanow
Organizer
North Reading, MA
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