We are the Swavely family. Nick, Diana, Noah (5), Micah (3), Levi (3), Caleb (2) and Eliza (2 months). Six months ago, our world was rocked when our youngest son was diagnosed with retinoblastoma, cancer of the retina, and had to have his right eye removed. We prayed for a calm and peaceful year, but it wasn't to be.
It's now been one week since our lives were changed forever, and we found out that our precious 5 year old boy Noah has Duchenne muscular dystrophy. Since that time we have been in research overdrive, trying desperately to find something that will help his weak muscles. There is no cure-the disease is always fatal, usually before age 25-but there is hope.
A treatment call VECTTOR, which involves the use of electrodes placed on various nerve points to stimulate and oxygenate muscles, has been shown to be effective for boys with DMD and other types of muscular dystrophy to get stronger and faster, and have more time before muscle fatigue occurs. It can help to delay the time before our boy will require the use of a wheelchair, allowing more time for him to wait for a cure before he becomes truly disabled.
It's an alternative treatment however, and our insurance will not cover one dime of the cost. It involves the purchase of a treatment unit that can be used indefinitely, and we will use to treat Noah everyday at home. We hope you will join us in making this treatment a reality for Noah. Hearing your 5 year old tell you it hurts to ride his bike, run and even go for a walk is heartbreaking. Please, help us to help him keep running, walking, riding, and climbing as long as we can.
You can watch this video showing some of the success patients with DMD are experiencing. You can find many more success stories on youtube.
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