Kingston’s Journey

New update! We have saved a bit for the next stem cells and have updated what is needed for Kingston’s next stem cell therapy we are currently aiming for $9,700 needed and this will change as we personally add to this when we are able to as well with donations for Kingston we are getting closer and I am so grateful for everyone who has helped. Thank you! One step closer

Kingston is almost 8 months into his first Stem Cell therapy and we can confirm that he took well to his first therapy!  They estimate about 6-9months post therapy, is when the benefits of the therapy stop. The growth stays but no new growth will continue. This time frame varies per child/adult and is an estimated time frame. 

Kingston has learned to say many new words and has found creativity inside that allows him to have more imagination when he plays and has opened new doors to emotional and cognitive connections with others. This therapy has done amazing things for my sweet Kingston. We are so grateful for the family and friends that donated towards this therapy for him. No words can describe the gratitude. 

We have spoken to Kingston’s Doctor and he suggested another round of Stem Cell Therapy will be beneficial for him. 
We are asking anyone who is able to donate to Kingstons Journey, we would greatly appreciate your kindness. If you cannot donate, but his Journey has touched your heart, please share this with others in hopes we can save up for Kingstons next Stem Cell Therapy. 
Follow Kingstons Journey on his page on Facebook “Kingston’s Journey”

https://www.facebook.com/share/x9Ukmgvcq9553eeY/?mibextid=K35XfP

Previous background about Kingston from before his first stem cell therapy:

My name is Emily and I am starting a fundraiser to help afford Stem Cell Therapy to help improve the diagnosis for my son Kingston who has regressive Autism level 3. Kingston is also non verbal. Many of you may have heard of Autism Spectrum Disorder also known as ASD but in the case that you are not aware what autism entails I would like to provide sufficient information to help you better understand what autism is and what it means for Kingston. Autism Spectrum Disorder is defined as a neurological and developmental disorder that affects how people interact with others, communicate, learn, and behave. No two people that have autism are the same so I want you to understand what autism looks like for Kingston. Kingston was diagnosed in November of 2023 with level 3 regressive Autism-non verbal. Level 3 is the highest level of autism someone can be diagnosed with. Regressive autism means that Kingston may learn a new word or ability and that new growth in his life can disappear with no knowledge of when or what growth will regress or if it will. Level 3 autism is Low functioning autism, refers to children and adults with autism who show the most severe symptoms of Autism Spectrum Disorder and are diagnosed as having Level 3 ASD. They are usually unable to live independently and require support from a guardian throughout their lives. Kingston is currently 2 1/2 years old. Kingston is the sweetest little boy, he is our sunshine. He is silly, sweet, vibrant and bright with so much love for life. He has been the biggest blessing in our lives. We want to be able to give him any and every chance to live his life to the fullest with the most ability he can obtain. When Kingston was about 10 months-12 months old, we started to notice changes with him. My little boy went from being able to say Mama, Dada, Papa, and Baba to not speaking at all. I have never heard my son tell me he loves me. Kingston regressed from any speaking and started to use tones and touch and sign to communicate. My hope is that one day I will be able to hear his sweet voice tell me he loves me back. It soon became noticeable the cute little hand flapping and spinning in circles, adjusting his head in cute little ways frequently and random frequent tones he would use were not as normal as we had thought. This is referred to as “stimming”. Stimming can be best described as-“Stimming – or self-stimulatory behaviour – is repetitive body movements or noises. Stimming might include: hand and finger movements – for example, finger-flicking and hand-flapping. body movements – for example, rocking back and forth while sitting or standing”. Kingston was too young to be tested for autism so we had to wait until he was old enough for the testing and the waiting process was long for an appointment. As we waited for Kingston to get older for this testing, we hoped maybe he was just holding back until he was ready to talk. No such luck. Currently now, Kingston can say Mama but he says this with no directive to me. Kingston says it because he is familiar with saying it but not to acknowledge me as Mama. Kingston had learned to say more…but now he doesn’t say it at all. Since Kingston’s diagnosis, he has started physical and occupational therapy as well as ABA therapy for behavioral health. Kingston’s aggressive behaviors are slowing starting to grow in a negative way when he is at school (daycare). We are currently in the processes of getting the care needed for him in the academic environment for him. The want and need for the stem cell therapy is with the hope Kingston will grow cognitively, verbally, emotionally and much more. The goal with this treatment is to give Kingston the chance to be able to live to his fullest potential with any positive advancement he obtains from this therapy. My hope for my child is that one day he can drive a car, have a job, and maybe a family of his own and be able to live independently. Any growth and the opportunity to live a normal life independently. Though through the therapies he has started as of now, there is hope and some growth but no guarantee. With the results from stem cell therapy that is now available today, this hope could be made a reality. What stem cell therapy does for autism is release growth factors which regulate the immune imbalance in autism and have a healing and regenerative effect on damaged tissue. The difference between the physical, occupational and ABA therapy to stem cell therapy is that with stem cell therapy it has been scientifically proven that there is no regression with any growth made. There is no promise regression won’t happen with the other therapies that are not stem cell therapy. Treatment amounts vary per person. One treatment may be enough, more may be suggested. We will be following Kingston’s doctor’s suggestions for care. At this time, stem cell therapy is not covered by insurance. I do not feel this should prevent Kingston from the opportunity to have a better quality of life. I thank anyone who is able to donate anything. No matter the amount, we greatly appreciate your kindness. If you are not able to donate, can you please take the time to share this. God bless you and thank you. Please feel free to join “Kingston’s journey” group on Facebook if you would like to be apart of his Journey with us ❤️ 
https://www.facebook.com/share/x9Ukmgvcq9553eeY/?mibextid=K35XfP