
200 mile cycle in a day for HSCT for Mel
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Hello everyone we are raising funds for my friend Melanie Cooper who's been diagnosed with MS to receive HSCT treatment. The following is her story. Please take the time to read. Thankyou xx
Hi, my name is Melanie Cooper I'm a 35 year old mum of one. In October 2020 I woke up feeling unbalanced and struggling to get out my words. I put it down to lack of sleep and doing overtime at work so I went to bed hoping it would go away. But he next day I felt worse so rang the local emergency doctors who sent me to the towns hospital. The doctor there immediately rang an ambulance and I
I then spent 5 days in Carlisle infirmary on a stroke ward with suspected tumour/stroke or MS. After a CT scan, MRI scan and a lumberpuncture I was diagnosed with MS. I was sent home on steroids feeling very weak and a awful slurred speech and body tremors. I made a recovery felt good had a great Christmas. Until I awoke on the 30th December 2020 I awoke to no feeling in my left side head to toe. This confirmed the MS was rapidly evolving. I was in a wheelchair for over 3 months and very rarely left he house. I am currently on a drug Tysabri which I have every 4 weeks via infusion. This makes me very weak, tired, gives me skin rashes and horrible headaches. This drug DOES NOT stop the MS or help the damage already done. It just suppresses the condition. I am looking to raise money for a treatment called HSCT, this can stop the progression of the MS. It is offered in the UK privately for around 125k in London so I have researched. In Mexico which is where I hope to go it is half that price at 50k this is what I'm hoping to fundraise for. The NHS only offers this treatment if I show signs of failing other drugs which in time would mean more disability, stress and my family and daughter seeing me deteriorate further. I really don't want to find out what a 3rd relapse would do to me or my family. This decision hasn't came easily but I just want to have the best quality of life I can with this incurable disease. Thankyou all for reading and participating in my journey with me. From the bottom of my heart thank-you. Mel x
Co-organizers (10)
Debbie Hodgson
Organizer
Melanie Cooper
Beneficiary
Kevin Marsh
Co-organizer
David Foster
Co-organizer
Kelly Smith
Co-organizer
Kevin Sharpe
Co-organizer