Cristian and Mia have been diagnosed with a rare genetic disease called CDG Congenital disorders of glycosylation. We are trying to raise awareness and fund’s for the CDG foundation to help find a cure. There are are approximately 1200 known cases worldwide. May 16 is world Congenital disorder of glycosylation(CDG) awareness day and a Bradford family is hoping to share more information about the rare diseases with the community. Matteo and Laura immigrated to Canada from Italy seven years ago, in august 2012 they were blessed with their firstborn child, Cristian and then their daughter Mia in October 2014. Both children have developmental delay issues at a very early age. They both have low muscle tone, couldn’t crawl, can’t hold their head like most other babies could, and could never sit up on their own. The hospital for sick children performed an MRI witch resulted a difference in the size of the cerebellum. This has affected my children with •Gait/posture abnormalities “ balance, posture,coordinated walking and running “ •Fine motor incoordination “ difficulty with fine motor tasks, handwriting,cutting food, opening jars” •speech difficulties “ difficulties with speech overtime such as slurred and slow speech “ • vision issues “ strabismus “ •Fatigue “ difficulties in any activities , concentration on movements “ •Cognitive and mood problems “Anxiety,depression,cognitive and emotional difficulties” •epilepsy •behaviours Please donate to help find a cure for the CDG Thank you in advance