Please help save my daughters life

We are currently raising funds for the Trikafta drug that will save Abigail’s life as she is battling the life threatening illness Cystic Fibrosis, with a lung function of 20%. She is unable to have a lung transplant due to a range of complications so this is her ONLY option. Thank you for visiting this page ... this is Abigail’s story. Cystic Fibrosis is a condition that causes the build of mucus in the lungs and digestive system. This causes many lung infections and difficulty digesting foods which you could empathise affects everyday life, all day. Since birth, Abigail has suffered with this illness and has had to manage a high intensity of drugs, physiotherapy, nebulisers and further medication, along with regular IV antibiotics through an internal portacath which you can only imagine is a detrimental struggle to every day life. This routine of medical treatment means that daily living is hugely demanding and exhausting for her body to manage. Everyday is a struggle to breathe which affects all aspects of life. Things such as, walking to the toilet, walking to the car from the house and even showering is massive struggle for Abigail and her breathing. Can you imagine not being able to do these things that sound so simple... this has become Abi’s unimaginable routine. Abigail is a young, 21 year old young lady who has her whole life ahead of her. She is sociable and has many friends and a boyfriend who she loves to spend time with however this is hugely limited due to her condition where she is housebound daily on oxygen and constant medication. Abigail worked extremely hard to gain her hairdressing qualification and wanted to get her dream job in a salon. This dream has been cut short due to her illness which is a total devastation to her and her family. Abigail is continuously in and out of hospital which you can only imagine is a huge stress on her and her family. The hospital in mention is 40 miles away which is an hour drive every trip. This makes visiting for friends and family difficult which then has a detrimental effect on Abigails mental health and well-being as she then feels isolated and significantly alone. So coping with this illness alongside lack of company and social life is heartbreaking for Abigail. She isn’t living as a 21 year old should be. As I am writing this, Abigail is wired up to an oxygen tank and a PEG feed (through her stomach) to increase her calorie intake due to loss of appetite, continuous nausea and sickness and zero energy to even consume any food or drink. She genuinely can’t live this way anymore and shouldn’t have to. This leads me on to why I am raising money for my daughter. This medication is truly life or death for Abi. The Trikafta Drug is a combination therapy drug containing elexacaftor, ivacaftor and tezacaftor which can help 90% of CF sufferers. It targets the faulty CF gene, improves lung function and drastically improves quality of life. The drug corrects the underlying cause of the disease itself which is why we are at a stage where we are in huge need of getting this drug as time is not on our side. This drug costs £245000 which is why we need as much help as we possibly can get. Your donations and support are what we are relying on as a family and Abigail is in need of all the funding she can get to get her life back. I want my daughter to become that sociable, fun loving and hardworking girl again as it’s breaking my heart everyday seeing how much of her life she has lost by deteriorating so quickly. We can’t live like this anymore which is why we really need to get this drug ASAP. Time is not on our side, so we beg and plead that you donate anything you can to this page and raise its profile as much as possible. We appreciate you taking the time to read our page and thank you so much in advance for your support and generosity.
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Organizer

Helen Purcifer 
Organizer
Stockton-on-Tees, North East England, United Kingdom