- R

My name is Krissy, and Devon is my nephew and my personal hero. Many of you know that Devon was born with a rare heart condition called Hypoplastic Left Heart Syndrome. He has dealt with so many hospital visits, countless IVs and procedures, and multiple surgeries including having a pacemaker put in several years ago. After the pacemaker, his health improved so much, up until recently. At his last appointment they discovered that one of his previous surgeries had come “undone” (which wasn’t something they had seen happen before). His doctors feel at this point, there is nothing surgically that they are able to do for him. As a result, he’s been placed on the transplant list for a new heart!
That appointment was January 28th. That is, as of the date I’m writing this, 25 days in the hospital. For every single one of those 25 days, his mom, my big sister Charline, has been by his side. Because they live over 2 hours away from the hospital, she stays in the Ronald McDonald House across the street from Children’s hospital, so that she can have a place to sleep, shower, and do laundry. The other 90% of her time is spent keeping Devon company. And that’s just for this one hospital admission. I’m not sure she would be able to count the number of times that she’s had to stay there during his surgeries or other illnesses that have required him to be hospitalized, because his heart was too weak to handle the illness on its own.
Normally, Devon’s dad and Charline’s husband, Darrin, would be right there with them. However, they have two other kids at home. Two kids who are still in school and needing a parent there for them. Two kids who miss their mom and big brother. Their family is split apart while they wait for a heart that is a match for him. Normal expenses like rent, utilities, and food, are starting to become a concern, as they have no idea how long it might take for him to get a heart. In addition to the surgery itself, he will still need to spend several weeks after for monitoring, before he’ll be allowed to go home. Having to split their already limited income is proving to be difficult and they’ve recently learned that they may lose some of their state provided benefits due to them not living in the house for 30+ days.
I decided to make this page to ask for help for them. I, along with other family and close friends have already been doing anything and everything we can to help. But there aren’t that many of us with the means to help them how they really will need to be helped. Once Devon is able to come home, he will need to make some changes in his life to accommodate his new heart. One of those things will be to get a new bed, because his old one might have germs that could potentially get him sick due to his weakened immune system after the transplant. They will have the bills to catch up on. I mentioned rent, utilities, and food. That’s just the bare necessities. They also have cell phone bills, car payments, the cost of gas for going to and from appointments, and expenses for wear and tear on her vehicle, to name a few.
My sister and her husband would never ask for anything. As a parent myself, I cannot even begin to imagine the stress that they must be feeling. If I were able, I would cover all of it in a heartbeat, with no questions asked. But I’m not able. However, unlike my sister, I can, and am, asking for your help. If any of you are able to donate anything at all, you will be helping their family so very much. Any little bit helps. Even a dollar will add up, if enough people chip in! If you can’t donate, please please please share this. Make it public and ask your friends and family to share! My wish is that this would go viral and they could have this financial weight lifted off of them so that they can focus on getting Devon healthy. Thank you ❤️
Organizer and beneficiary
Charline Holsinger
Beneficiary

