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Isabella’s Medical Expenses

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Isabella is a beautiful, strong, smiley  princess who is 20 months old. She was diagnosed with Larsen Syndrome. She was born at 35 weeks by an emergency c section due to fetal distress. At birth she weighed 5 pounds 8oz, and had malformations that at the time were yet to be classified. She spent 5 months in the NICU and was released with a gastrostomy feeding tube, often called a G-tube. She presented strong symptoms from Larsen Syndrome. She was affected by dislocated hips and knees, foot issues, hearing loss, hyper-mobility, dislocated vertebrae in her neck, respiratory problems, a submucous cleft palate, feeding issues, and Larsen-like facial features. She also possibly has Cyclic neutropenia ( a rare blood disorder characterized by recurrent episodes of abnormally low levels of neutrophils (a type of white blood cell ) in the body.). She lives in Brazil but currently is in the US at Quantum House at St. Mary’s Hospital, in Florida waiting for her first surgery. She also is being treated with a  very expensive medication for her  blood issue, cyclic neutropenia.  As we all know, medical expenses is extremely costly. This fundraiser has been established to help ease the burden on the family so they can focus on her healing.  All funds raised will go directly to Isabela’s medical-related expenses. Please feel free to share this fundraising  with your families and friends. Any donation that you are able to make will greatly bless this family.  On behalf of Isabella and her family, we appreciate the outpouring of love, prayers and support that will be needed over the coming days and months. God bless you! YouTube like of her video : https://youtu.be/KO8FWWloAIQ

Fundraising team: Isabella’s future (2)

Dayane Gomes
Organizer
Manassas, VA
Aline Weis
Team member

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