Help me pay for genetic testing

They think I have a brain disorder called cadasil. Cadasil is a rare disorder and not many people know anything about it. It is genetic disorder and a disease of the small blood vessels in the brain. There is no treatment. Nothing makes it better. In the end it is fatal. My mri supports the cadasil diagnosis. My symptoms support that diagnosis. But a genetic test is required to know. For me the biggest problem is memory. Mine is disappearing and everything is much harder. Cadasil is a form of vascular dementia. They tell me my insurance will likely turn testing down. They will say because of my age and because there is no effective treatment it is not a medical issue but a life issue. I need to know. The geneticist tells me as many as 11 other genetic disorders could account for what is happening to me. I just need to know. I know in these times many people can not help. If you can I would be past grateful. Either way please share this with others. Thank you for everything.

Donations

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  • Elissa A Kinch 
    • $20 
    • 1 mo
  • Anonymous 
    • $100 
    • 1 mo
  • Christine Davis 
    • $15 
    • 1 mo
  • LESLIE KURTZ 
    • $10 
    • 1 mo
  • Lorie Tamaro 
    • $25 
    • 1 mo
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Organizer

Larry Drain 
Organizer
Knoxville, TN

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