Phillip was born on March 12, 2019, at St. Mary’s Hospital in St. Louis, but he was immediately transferred to Cardinal Glennon Children’s Hospital in St. Louis, where he still resides.  He has a twin sister named Phoibe that was born with no health issues and a 4 year old brother that wants his 'owie baby' to come home. Phillip had his first heart surgery at 9 days old to repair an interrupted aortic arch (type B). The next day he was wheeled back into the operating room for an emergency placement of Pulmonary bands to stop his heart from flooding his lungs with blood. In addition to those surgeries Phillip has also had bilateral coanal atresia repair, TE fistula repair, G tube placement and tracheostomy surgery. He has had several exploratory surgeries and more pokes and tests than I can count. He has also been diagnosed with Dandy Walker Varient, meaning that part of his cerebellum did not completely form. Most recently he has had a complete AV canal defect repair and removal of his pulmonary bands but just weeks after that open heart surgery we have found out that Phillip will need another open heart surgery to remove an obstruction inside his heart. Phillip's issues all stem from a rare genetic condition called CHARGE syndrome. Phillip's vision, hearing and balance have also been greatly affected by CHARGE. Phillip’s father, Jack works full-time but visits on his days off. I have quit my job to remain by Phillip's side, 2 hours away from home. Thankfully, I have been able to stay at the Ronald McDonald House with Phoibe and our 4-year-old son, Oliver. Our mission is to help raise funds to offset Phillip's astronomical medical expenses as well as travel expenses and to keep up with our necessary bills while I am out of work. If you can help... every dollar adds up. If you can't help financially please share the fundraise link so we can spread the word. We are overwhelmed by the kindness and generosity that everyone has shown. Thank you for you from Kierra, Jack, Oliver, Phillip and Phoibe!