Karl Lovall: 2 In A Million
Donation protected
Hi my name is Reilly. I am 20 years old & my boyfriends full-time care taker. I would like to tell everyone a little bit about his story. Many people know Karl Lovall, 22 years old from Rochester, NY as the most positive, optimistic person they know.
He has been through more hardships than most. With both parents passing away by the age of 16. His mother passed away from a rare cancer called F.A.P Familial Adenomatous Polyposis when he was 13 years old. Karl’s mom was his entire world, and they had a bond that couldn’t be replicated or broken. This devastated Karl, but he never lost hope.
He then moved in with his father, who ended up passing away 2 weeks after his 16th birthday from complications due to congestive heart failure. Karl would wipe his butt, talk to all his doctors at the young age of 15, advocating for his father until the day he died.
You would never know this by talking to Karl. He hates pity & never uses this as an excuse ever. But during this trying time, it’s been harder than ever considering he took care of them until they passed & now he feels lonely by not having his parents there to comfort him now that he is ill.
The past couple years have been tough for him, but he never complains to anybody, his most closest friends didn’t even know the suffering he was going through on a daily basis. He has been vomiting daily, in severe pain & still manages to make his friends feel loved & carry out his everyday routine.
On July 1st, we got news that completely changed our lives. The throwing up, and pain he was expiercing wasn’t just a food allergy as had been suggested by some doctors. We ended up getting told Karl has 3 tumors in his abdomen area. Up until July he was pushing through the pain, still working at Wegmans in Brockport although being ill. He would vomit on a daily basis, but never call in sick, worrying he would let his coworkers and employer down. He always thinks about everyone else, so being sick at work was something he just put beside him & chose to power through it.
The pain from one of the larger 5.5 inch tumors is making him unable to function like he normally could. He has been out of work since undergoing his first surgery procedure, a cystoscopy, where they put two stents in his both sides running from his kidneys to his bladder. This was performed at Strong Memorial Hospital. He is still recovering weeks after from this particular procedure.
After going through several failed endoscopies, we were desperately looking for answers. On the third procedure, a laproscopy which was performed at strong, they were able to identify exactly what it is.
This procedure was painful and tested his absolute limit. We ended up going to Strong West after the labroscopy but received inadequate care. He was vomiting nonstop and couldn’t keep down any liquids or food for 3 days and the doctors there thought giving him a opioid would fix all his problems, it didn’t. It made everything worse.
That night after being forced out of Strong West and still ill, he ended up being rushed by ambulance to Strong Memorial in Rochester once we got home. Upon getting to the hospital, he was stuck waiting in the hallway for a several hours, vomiting blood and completely dehydrated. After waiting many more hours we finally were able to get a split room, a lot of time went by before even seeing a doctor or nurse.
Approximately 12 hours later, his oncologist surgeon came in to take a look at Karl and give his opinion. He was shocked that Karl had been admitted for that long with no fluids being offered to him. It wasn’t until hours again of waiting that the nurses decided putting a tube through his nose, down his throat and spleen to suction his stomach out was a better idea than hydrating him. He again didn’t have any fluids and after the tube was failed to be put down his throat and he projectile vomited everywhere, they insisted they would try again.
After Karl requested he had numbing spray for his throat to make it easier, they again did it and successfully reached it to his stomach. The only issue was that he was not being monitored closely enough. The suction that was in his stomach ended up coming up and suctioning his throat, leaving him having a hard time breathing. His face and body ended up turning pink and remained that way the whole time the tube was in his body.
After we insisted it wasn’t working, and they took it out 6 hours later, he was finally able breathe and semi lay down. Another 8 hours of waiting and he was finally able to get a bed in the Wilmot Cancer Center Wing. The nurses worked diligently with him, trying to accommodate him the best they could. Days spent with IV fluids paired with anti nausea started slowly helping, but nothing takes the pain completely away. He lives his life with a constant 7-8/10 pain level, always. I’m writing this sitting next to him still in the cancer center. (8/18/19)
But in the end we found out it is what his mom suffered with for so long, F.A.P. with also a very rare desmoid tumor in his mesentery. Which only occurs in .03% of all tumor cases & approximately 2 in a million. Karl has been diagnosed with the same cancer and tumor that his mom had, and got diagnosed with it the same age she did. It’s remarkable how things turn out, but even throughout all of this, he kept making sure *I was okay, signing “I love you” & winking at me even when he couldn’t talk, making sure I was okay when he was the one in agonizing pain.
The last thing Karl wants is sympathy and is not crying out for attention. I’m asking people to come together as a community to give him the support he deserves and so desperately craves. He is the most loving and giving person and has/is going through something so difficult and painful.
He has been denied from the Mayo Clinic, a hospital that specializes in the rare cancer and inoperable tumor. They claim they will only see him if he pays $5,000 for a deposit and every procedure out of pocket after that.
He still has bills, he still has hospital expenses, and has only seen 1 check from disability which is also giving him problems.Pray to your higher power, donate money if you can, and please send positive vibes and good thoughts his way.. we both appreciate it immensely.
If you’re still reading, please get checked out when feeling ill. Don’t push it off for next week, or when you have “the time”. Please make the appointment now. Invest in your health now so you won’t have to be paying for it later.
Attached are links if you’re interested in learning more about his cancer and disease.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3180149/
https://rarediseases.org/rare-diseases/desmoid-tumor/
He has been through more hardships than most. With both parents passing away by the age of 16. His mother passed away from a rare cancer called F.A.P Familial Adenomatous Polyposis when he was 13 years old. Karl’s mom was his entire world, and they had a bond that couldn’t be replicated or broken. This devastated Karl, but he never lost hope.
He then moved in with his father, who ended up passing away 2 weeks after his 16th birthday from complications due to congestive heart failure. Karl would wipe his butt, talk to all his doctors at the young age of 15, advocating for his father until the day he died.
You would never know this by talking to Karl. He hates pity & never uses this as an excuse ever. But during this trying time, it’s been harder than ever considering he took care of them until they passed & now he feels lonely by not having his parents there to comfort him now that he is ill.
The past couple years have been tough for him, but he never complains to anybody, his most closest friends didn’t even know the suffering he was going through on a daily basis. He has been vomiting daily, in severe pain & still manages to make his friends feel loved & carry out his everyday routine.
On July 1st, we got news that completely changed our lives. The throwing up, and pain he was expiercing wasn’t just a food allergy as had been suggested by some doctors. We ended up getting told Karl has 3 tumors in his abdomen area. Up until July he was pushing through the pain, still working at Wegmans in Brockport although being ill. He would vomit on a daily basis, but never call in sick, worrying he would let his coworkers and employer down. He always thinks about everyone else, so being sick at work was something he just put beside him & chose to power through it.
The pain from one of the larger 5.5 inch tumors is making him unable to function like he normally could. He has been out of work since undergoing his first surgery procedure, a cystoscopy, where they put two stents in his both sides running from his kidneys to his bladder. This was performed at Strong Memorial Hospital. He is still recovering weeks after from this particular procedure.
After going through several failed endoscopies, we were desperately looking for answers. On the third procedure, a laproscopy which was performed at strong, they were able to identify exactly what it is.
This procedure was painful and tested his absolute limit. We ended up going to Strong West after the labroscopy but received inadequate care. He was vomiting nonstop and couldn’t keep down any liquids or food for 3 days and the doctors there thought giving him a opioid would fix all his problems, it didn’t. It made everything worse.
That night after being forced out of Strong West and still ill, he ended up being rushed by ambulance to Strong Memorial in Rochester once we got home. Upon getting to the hospital, he was stuck waiting in the hallway for a several hours, vomiting blood and completely dehydrated. After waiting many more hours we finally were able to get a split room, a lot of time went by before even seeing a doctor or nurse.
Approximately 12 hours later, his oncologist surgeon came in to take a look at Karl and give his opinion. He was shocked that Karl had been admitted for that long with no fluids being offered to him. It wasn’t until hours again of waiting that the nurses decided putting a tube through his nose, down his throat and spleen to suction his stomach out was a better idea than hydrating him. He again didn’t have any fluids and after the tube was failed to be put down his throat and he projectile vomited everywhere, they insisted they would try again.
After Karl requested he had numbing spray for his throat to make it easier, they again did it and successfully reached it to his stomach. The only issue was that he was not being monitored closely enough. The suction that was in his stomach ended up coming up and suctioning his throat, leaving him having a hard time breathing. His face and body ended up turning pink and remained that way the whole time the tube was in his body.
After we insisted it wasn’t working, and they took it out 6 hours later, he was finally able breathe and semi lay down. Another 8 hours of waiting and he was finally able to get a bed in the Wilmot Cancer Center Wing. The nurses worked diligently with him, trying to accommodate him the best they could. Days spent with IV fluids paired with anti nausea started slowly helping, but nothing takes the pain completely away. He lives his life with a constant 7-8/10 pain level, always. I’m writing this sitting next to him still in the cancer center. (8/18/19)
But in the end we found out it is what his mom suffered with for so long, F.A.P. with also a very rare desmoid tumor in his mesentery. Which only occurs in .03% of all tumor cases & approximately 2 in a million. Karl has been diagnosed with the same cancer and tumor that his mom had, and got diagnosed with it the same age she did. It’s remarkable how things turn out, but even throughout all of this, he kept making sure *I was okay, signing “I love you” & winking at me even when he couldn’t talk, making sure I was okay when he was the one in agonizing pain.
The last thing Karl wants is sympathy and is not crying out for attention. I’m asking people to come together as a community to give him the support he deserves and so desperately craves. He is the most loving and giving person and has/is going through something so difficult and painful.
He has been denied from the Mayo Clinic, a hospital that specializes in the rare cancer and inoperable tumor. They claim they will only see him if he pays $5,000 for a deposit and every procedure out of pocket after that.
He still has bills, he still has hospital expenses, and has only seen 1 check from disability which is also giving him problems.Pray to your higher power, donate money if you can, and please send positive vibes and good thoughts his way.. we both appreciate it immensely.
If you’re still reading, please get checked out when feeling ill. Don’t push it off for next week, or when you have “the time”. Please make the appointment now. Invest in your health now so you won’t have to be paying for it later.
Attached are links if you’re interested in learning more about his cancer and disease.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3180149/
https://rarediseases.org/rare-diseases/desmoid-tumor/
Organizer and beneficiary
Reilly Anne
Organizer
Rochester, NY
Karl Lovall
Beneficiary