Hi! I am Nathalie Hernández and this is my brother Carlos, 39 years old, an Electrical Engineer, married and father of two beautiful girls, Ivian 5 and Avril 3. Carlos suffers from a very rare genetic disease called Erythropoietic Protoporphyria (EPP), from the group of metabolic disorders of Porphyrias. A disease that makes him suffer with severe photosensitivity to sunlight that directly affects his liver and other main organs. After some medical testing was conducted, it was confirmed that because of this rare disease Carlos now needs a liver transplant due to a Hepatic Cirrhosis diagnosis. We have organized this fund-raising campaign to support him during this difficult time. He and his wife will both have to put working on hold for a long time. There will be a range of medical expenses and other financial challenges to face. We are asking for your help so our dear brother can get his liver transplant. Every prayer, every positive thought, every donation, and every gesture of support is greatly appreciated. Any amount will count and make a difference.
Thank you and please check back here for updates!
To learn more about this desease, please visit:https://rarediseases.org/rare-diseases/erythropoietic-protoporphyria/