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it is very hard to ask for help. i don’t even know what reasons to give you to inspire you to donate a few bucks to help me return to my life after a craniotomy
i am a good person. i live my life in service-peaceful compassionate service, to the world in any way that i can...i rescue animals of almost all species, i am mindful, loyal, honest, spiritual. i would and have given the shirt off my back. i have cooked to bring comfort, joy and beauty to the wealthy and the homeless. i’ve taken care of the sick when the doctors and nurses wouldn’t even walk into the room, i’ve educated folks about that same disease, going into places that would likely send my parents into an early grave, to show how best to clean a syringe BEFORE you share it with a friend, i’ve spent hours upon hours advocating on the streets for equality and justice.
i can do more.
on march 27 i was diagnosed with an acoustic neuroma a very rare brain tumor that grows from the over production of schwann cells that insulate the eighth cranial nerve. the tumor is benign (99% of the time) and it grows, so it has to be removed-the surgeons say asap if i want to maintain what hearing i have left in my left ear. that’s how this little fu%#€£ was discovered. i thought i had water in my ear-(confirmed by an urgent care facility physician in my neighborhood-“ if you still are having a problem in 5-6 months, see an ent”..
six months later, i went to see an ent and they confirmed i had permanent hearing loss and the doctor ordered an mri...and there it was...glaring out of the films like the sun reflected into your eyes from the water.
it has to be removed. i have consulted with many physicians, surgeons, neurologists, nurses, my pastors, God...it is ultimately fatal if left to grow, it has to come out.
turns out there are a handful of places across the globe that actually specialize in treating an acoustic neuroma...mainly because it is so very rare. based upon my consultations and research
the few local hospitals/surgeons capable of performing this delicate extraction have a tremendous percentage of really terrible outcomes.
guaranteed single sided hearing loss
likely single sided facial paralysis (inability to close mouth, eye, affects ability to swallow in some cases
likely balance issues. feeling like a sober mind inside a drunk body,
in the places that specialize in treating acoustic neuroma ssi they could likely save my hearing and likely no damage to the facial and balance nerve.
the local hospital equipped to handle this surgery do 3, maybe 4 a year on average...(confirmed stat)
the hospital that i have chosen does 700 per year.(confirmed stat)
please help me get to a place where i have the very best chance of returning to my life...my curious, creative, active, wonderful life.
my surgery is scheduled for may 16.
please
please
help me get there
hello all thank you for coming to my gofundme site
the original post is below, this is an update.
i have been scheduled for brain surgery to remove a tumor on may 16 2019
right now i do not have an authorization from my insurance though i am confident there will not be any problems there.
i am having the surgery out of state so that i can be in a state of the art facility that exclusively treats acoustic neuroma.
i’ve gotten estimated pricing for the surgery and a good idea of what my insurance will cover.
my responsibility including travel, is just a tad over $ 10,000.
please donate whatever you can...$5.00 even will make a difference.
it is quite hard to ask for help.
i thank God that gofundme exists.
thank you so much for your generosity
thank you for helping me stay alive.
it’s a really big deal
blessings
last week i was diagnosed with an acoustic neuroma also known as vestibular schwannoma. there is a sheath of schwann cells that “insulate” our 8th cranial nerve that controls hearing and balance, tightly intertwined in this 8th cranial nerve line are nerves control i facial movement and the ability to swallow. i have been diagnosed with a vestibular neuroma approximately 1.5 cm. these brain tumors generally grow very slowly and sometimes when detected you can watch and wait and have serial mris. radio therapy/ gamma knife and middle fossa surgery to remove the neuroma. fortunately my insurance allows for the top surgical team in the world!!! (doing the happy snoopy dance)and, i have the responsibility of 40% of all charges related to hospital stays (on a good day). i’m not sure that before yesterday i even knew what 40% coinsurance meant. it means you might pay 40%...FOR BRAIN SURGERY!!! but, hey, when you are looking at that zero deductible health insurance with low co pays...make sure to look at what they pay for in the case of really serious stuff....i mean what artist do you know that has a spare $100k lying around to pay for brain surgery.i don’t know the actual projected cost and i will update this ask...no, beg,in the next day or two seriously, i am begging...for $25 bucks...$50...whatever you could easily spare to help me get this little $&%#£¥!i need to have this surgery asap.i cannot accept that God brought me this far to let it deteriorate here.i believe that i am deeply flawed...as most of us are. i also believe with the help of many of you i turned out a pretty decent person. i am loved by children and animals! i try to live a life of honesty and integrity and complete respect for everyone in some way shape or form, we are all the same.i am not going to cure cancer or figure out whirled peas ( or national peace for that matter ) i have tried to learn from my mistakes and above all else to appreciate this beautiful world we live in and every day i am looking out for those around me to the best of my ability. i believe anyone that knows me well would agree that i have something to offer.i am asking you, my friends and acquaintances please to give me whatever you can...no amount is too small.thanks for reading all of this. i appreciate deeply your consideration. peace
i am a good person. i live my life in service-peaceful compassionate service, to the world in any way that i can...i rescue animals of almost all species, i am mindful, loyal, honest, spiritual. i would and have given the shirt off my back. i have cooked to bring comfort, joy and beauty to the wealthy and the homeless. i’ve taken care of the sick when the doctors and nurses wouldn’t even walk into the room, i’ve educated folks about that same disease, going into places that would likely send my parents into an early grave, to show how best to clean a syringe BEFORE you share it with a friend, i’ve spent hours upon hours advocating on the streets for equality and justice.
i can do more.
on march 27 i was diagnosed with an acoustic neuroma a very rare brain tumor that grows from the over production of schwann cells that insulate the eighth cranial nerve. the tumor is benign (99% of the time) and it grows, so it has to be removed-the surgeons say asap if i want to maintain what hearing i have left in my left ear. that’s how this little fu%#€£ was discovered. i thought i had water in my ear-(confirmed by an urgent care facility physician in my neighborhood-“ if you still are having a problem in 5-6 months, see an ent”..
six months later, i went to see an ent and they confirmed i had permanent hearing loss and the doctor ordered an mri...and there it was...glaring out of the films like the sun reflected into your eyes from the water.
it has to be removed. i have consulted with many physicians, surgeons, neurologists, nurses, my pastors, God...it is ultimately fatal if left to grow, it has to come out.
turns out there are a handful of places across the globe that actually specialize in treating an acoustic neuroma...mainly because it is so very rare. based upon my consultations and research
the few local hospitals/surgeons capable of performing this delicate extraction have a tremendous percentage of really terrible outcomes.
guaranteed single sided hearing loss
likely single sided facial paralysis (inability to close mouth, eye, affects ability to swallow in some cases
likely balance issues. feeling like a sober mind inside a drunk body,
in the places that specialize in treating acoustic neuroma ssi they could likely save my hearing and likely no damage to the facial and balance nerve.
the local hospital equipped to handle this surgery do 3, maybe 4 a year on average...(confirmed stat)
the hospital that i have chosen does 700 per year.(confirmed stat)
please help me get to a place where i have the very best chance of returning to my life...my curious, creative, active, wonderful life.
my surgery is scheduled for may 16.
please
please
help me get there
hello all thank you for coming to my gofundme site
the original post is below, this is an update.
i have been scheduled for brain surgery to remove a tumor on may 16 2019
right now i do not have an authorization from my insurance though i am confident there will not be any problems there.
i am having the surgery out of state so that i can be in a state of the art facility that exclusively treats acoustic neuroma.
i’ve gotten estimated pricing for the surgery and a good idea of what my insurance will cover.
my responsibility including travel, is just a tad over $ 10,000.
please donate whatever you can...$5.00 even will make a difference.
it is quite hard to ask for help.
i thank God that gofundme exists.
thank you so much for your generosity
thank you for helping me stay alive.
it’s a really big deal
blessings
last week i was diagnosed with an acoustic neuroma also known as vestibular schwannoma. there is a sheath of schwann cells that “insulate” our 8th cranial nerve that controls hearing and balance, tightly intertwined in this 8th cranial nerve line are nerves control i facial movement and the ability to swallow. i have been diagnosed with a vestibular neuroma approximately 1.5 cm. these brain tumors generally grow very slowly and sometimes when detected you can watch and wait and have serial mris. radio therapy/ gamma knife and middle fossa surgery to remove the neuroma. fortunately my insurance allows for the top surgical team in the world!!! (doing the happy snoopy dance)and, i have the responsibility of 40% of all charges related to hospital stays (on a good day). i’m not sure that before yesterday i even knew what 40% coinsurance meant. it means you might pay 40%...FOR BRAIN SURGERY!!! but, hey, when you are looking at that zero deductible health insurance with low co pays...make sure to look at what they pay for in the case of really serious stuff....i mean what artist do you know that has a spare $100k lying around to pay for brain surgery.i don’t know the actual projected cost and i will update this ask...no, beg,in the next day or two seriously, i am begging...for $25 bucks...$50...whatever you could easily spare to help me get this little $&%#£¥!i need to have this surgery asap.i cannot accept that God brought me this far to let it deteriorate here.i believe that i am deeply flawed...as most of us are. i also believe with the help of many of you i turned out a pretty decent person. i am loved by children and animals! i try to live a life of honesty and integrity and complete respect for everyone in some way shape or form, we are all the same.i am not going to cure cancer or figure out whirled peas ( or national peace for that matter ) i have tried to learn from my mistakes and above all else to appreciate this beautiful world we live in and every day i am looking out for those around me to the best of my ability. i believe anyone that knows me well would agree that i have something to offer.i am asking you, my friends and acquaintances please to give me whatever you can...no amount is too small.thanks for reading all of this. i appreciate deeply your consideration. peace