Tevin is a delightful 22-year-old with 11q Deletion Syndrome in the care of his single mom, Robin. 

Robin and Tevin have never met another person with 11q Deletion Syndrome because this rare chromosomal syndrome only occurs in about 1 in 100,000 people and there are only 200 known cases diagnosed.

This summer, they have a chance to attend a medical conference in San Diego, CA with Dr. Grossfeld who located the gene deletion.  AND, they are hoping to meet others with this syndrome for the first time!!

Anyone who has met Tevin knows what a big personality he has.  He makes friends everywhere he goes and will always put a smile on the faces of those around him. 

Robin is Tevin's fulltime caregiver, and due to his multiple medical needs and the extensive support he requires, she is unable to work and lives on a very limited income.  They would be SO appreciative of your support in helping them get to California this summer to learn more about this syndrome and meet others who share this diagnosis.  

Please help by contributing whatever you can to this fund!