* All money raised goes to fund clinical research to improve the lives of those affected by Spinal Muscular Atrophy (SMA) *

Last year James (my eldest son), Milo (our Labradoodle) and I, alongside 100 friends, completed the Cotswold Way. This year, with 2nd son Charlie added to the team, we take on our greatest challenge yet - completing 107 miles of the Jurassic Coast from Exmouth to Bournemouth over 3 days, 20 - 22 June 2025, to raise money and awareness for the Rally Round Rupert Charity. In addition to supporting Stan (who has SMA) in achieving his goal of completing the 107 miles in his wheelchair, we will be accompanied by George (Rupert's dad) in a giant Rupert outfit. Please donate to an amazing cause.

Spinal Muscular Atrophy (SMA) is a genetic, neuromuscular condition that causes muscle weakness and wastage due to a loss of motor neurons. Each year about 1 in 10,000 children are born with the condition and before 2016, without treatment, most children with SMA Type 1 were expected to live for less than two years. Today, early diagnosis can significantly abate the impacts of SMA, however, more awareness is needed to recognise the symptoms and clinical research is essential to improve quality of life for those affected.

More information about RALLY ROUND RUPERT: To relieve the need and protect the health of children and their families affected by SMA throughout England & Wales for the public benefit by: a. Working to improve the understanding and knowledge of SMA among the public. b. Providing financial support to further advance clinical research into SMA.

To learn more about SMA you can follow Rupert’s journey on Instagram, @rallyroundrupert.