A group of friends coming together to cycle 100km on 22nd April, raising funding to help build a Breathing Pacemaker for babies who are born with a rare genetic condition called Congenital Central Hypoventilation Syndrome (CCHS). 

Children with CCHS stop breathing the moment they fall asleep and there is no cure or treatment except artificial life support. Our close friends James & Steph are changing that after their baby Casper was born with CCHS. 

They are working hard with Cambridge University and medical engineers to build the Breathing Pacemaker. The first new treatment for CCHS in 50 years. It will change the lives of thousands of children by breathing for them while asleep. Meaning they can sleep alone without a nurse watching them every single night, can go to a friend's house after school, and help fight off common infections such as a cold, that will often send a CCHS child into hospital.

Please be part of making this a reality by donating to the Keep Me Breathing charity. You can read more about the charity and Casper’s story so far, at 
keepmebreathing.com | Instagram