ETHAN NEEDS A NEW FEEDING CHAIR.
Ethan Gosden is the youngest of 5 beautiful children and is now 2yrs old.
Ethan was diagnosed with Periventricular Nodular Heterotopi. ( Extremely rare brain disease ) at a young age. His brain did not form properly and now he has a cluster of lesions deep in the left side of the brain. There has only been 3 other males in the world that have been diagnosed with this. It causes Ethan to have Dacrystis Seizures. Only 1 in 1 million children are diagnosed with this form of seizures. Ethan has 2-3 seizures every hour.
Ethan has to spend 8 hours or more a day secured and supervised in his high chair to be fed through a tube directly going into his stomach. He has to be kept upright or at no more than a 45 deg angle so he does not aspirate on his food. Ethan has now outgrown this chair and is extremely uncomfortable and restless.
This fundraiser is to purchase a spealized feeding chair that has multiple functions. eg: Ethans little body will be properly supported while he feeds, interacts, sleeps and he can be transported outdoors. In this chair, all of this can be done without his feeds being disrupted.This chair is vital to assit in Ethans development and quality of life. It really needs to be purchased as soon as possible.
The relevant government agents (DSQ) are aware of the situation and said it would take 12 months for the funding to be approved. Having witnessed the Gosden family constantly hitting brick walls with government agencies, this time frame could end up being a lot longer or worse; not at all.
My Name is Ken, and I am a close family friend.
I have a special bond with Ethan and just want to help the little fella out. I appreciate this is a massive ask but this feeding chair is vital. Any donation is so greatly appreciated, and all funds will go directly to The Gosden family, via Stripe, to purchase the chair.
Please share this fundraising campaign far and wide.