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Enzo's Wish

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Duchenne Muscular Dystrophy (DMD) is not well known, in fact I had never heard of it until a few weeks ago. Enzo was referred by his Physio to see a consultant to get his mobility checked over as he doesn't quite run properly. The tests where taken and then I got a phone call the next day to come back up to discuss the results. I am so glad my dad came with me as what I heard totally swept me off my feet, my little baby, my beautiful little Enzo has Duchenne Muscular Dystrophy, still at this point both my dad and I didn't have a clue what it was until those three little words where said and I lost it, I had no control over my emotions - "life limiting illness" as a single mother or in fact as a parent at all this is the worst news ever, something I thought I would never hear, something you hear in the movies... But unfortunately my Enzo has DMD. DMD is a muscle wasting illness, by the age of 10 Enzo may loose total mobility of his legs and be wheelchair dependant. In later teenage years his breathing and heart could be affected. Life expectancy for boys with DMD is in their 20s. There is currently no cure for DMD.Enzo is a normal little boy "now", he struggles a little with running and walking up stairs but apart from that is a very happy healthy little boy, whom everyone adores. He really is a special little boy. We will need to move to an adapted house eventually with lifts and a wet room etc but now we want to make life as normal as can be. With a few extra treats.I have set up a "gofundme" page and will be fundraising to make Enzos next few years with full mobility extra special & also seek medical advice anywhere and everywhere to extend the mobility and life of my beautiful little Enzo.Please give any spare change you have to make some extra special memories for my little boy and also seek the best medical support I possibly can. Thank you xx

Donations 

  • Jordon Haigh
    • £5 
    • 4 yrs

Organizer

Hayley Ellis
Organizer

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