Emma DegenerativeLeiomyopathy fight

Emma’s News Channel 3 Story 

Emma Rose Neal began her tough journey May 7th when she  was diagnosed with Gastroparesis (Partial Paralyzation of her stomach). Also has a central TPN for nutrition
Since then she’s been the hospital all with the exception of 7 days. She’s had a few good days in between.

However, Now we are currently admitted into Motts Children’s Hospital in Ann Arbor. Emma’s hasn’t had anything to eat/drink anything the last 13 days. She was very dehydrated at the time of admission.
she is currently receiving TPN, IV Fluids and recently NG tube Nutrition.
We aren’t quite sure of the next steps, only that Emma needs to go to Cincinnati to be seen by their Motility Doctors.

As for now, we’re asking if anyone can help us out in any way,  we’re currently needing help with hospitality(hotels) and gas money. As the insurance company hasn’t gotten back with social services to help with hospitality while we’re here. So it’s $90 a day for a hotel.  And John still has to work because we still have bills at home which he now has to drive 105 miles to work and 105 miles back. 

All we want to do is always remain close/next to Emma at all times as she goes through this rough road. 
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Emma was recently diagnosed with Degenerative Leiomyopathy. An extremely rare disease. She is the first documented case in the US. Her outcome is unknown. Doctors have no information about it except that there were 34 cases of it in Africa in 1992.


if anyone has anything they could donate. Even gas cards can be given to my Aunt Debbie Finch, she’s willing to meet up to collect donations. 
Thank you for your time

#EMMA ROSE STRONG