Team Emily

Emily has had 24 surgeries to date and will probably require more. She has Ehlers Danlos Syndrome, Chiari Malformation, Mast Cell Activation Disorder, Tethered Cord Syndrome, Interstitial Cystitis, Gastroparesis and Intracranial Hypertension. She is treated for most of these conditions in Maryland which is where her highly specialized neurosugeon practices medicine. Her medical costs are great and her family is working hard to keep her alive and pain free.
She just spent six months away from home to recieve appropriate medical care.