Emilie's Cure

$33,421 of $100k goal

Raised by 267 people in 4 months
Hi! Emilie is our incredible, amazing 9 year old daughter. On September 9th of this year we were hit with news that no parent should ever hear. She was diagnosed with the worst possible disease...a DIPG (Diffuse Intrinsic Pontine Glioma) which is a deadly brain tumor and the prognosis is about as bad as it can be.  Approximately 50% of kids do not make it a year past diagnosis and 90% don't make 2 years.  Time is not on our side and we are in the fight for her life!  Our options are limited...

Emilie has been so brave through all of this.  As her picture shows, she loves swimming and everything was absolutely normal. This past year she joined a swim team and began having headaches in the water.  At first, her mom and I didn't think too much of it because we have allergies and get headaches all the time.  But, they kept coming so we saw a neurologist.  An MRI later and Emilie was in the hospital.  She has received incredible care at University Health in Shreveport, St. Jude and Le Bonheur in Memphis.  She has bravely faced 2 surgeries, completed 30 treatments of radiation without being sedated, and said "Just do it" to countless needle sticks. The worst has been the physical and emotional devastation of steroids and some of the disabilities from the effects of the tumor. Yet, through it all, she laughs, plays and defiantly tries to be a normal 9 year old girl. 

If you read about DIPG, radiation seems to be the only treatment, but it is not a cure... there is no cure. We are now at the point where we are forced into a real life game of "Let's Make a Deal" where we have to choose between what's behind door number 1, 2 or 3.  This means finding the doors, qualifying for them and figuring out which door is the best for Em.  That has been an impossible task for her mother and I.  But, we have narrowed them down and are still waiting on consults.

This is where we need you.  We have been researching options from San Francisco to London and everywhere in between.  A couple are clinical trials where we will need to pay for travel, hotel, food etc... There is another procedure where we won't qualify for the trial, but could pursue it on a compassionate basis but based on reports, it is extremely expensive.  It also may be the best hope for saving Emilie's life. Even though we don't have a decision on where we are going, we don't have any time to waste.  We've been told that after initial treatment, this particular cancer comes back fast and mad.  So, we have to launch this campaign now.

Our daughter is amazing and if anyone can beat this terrible monster, it is Emilie.  We know what the statistics say... less than 1% of children make it past 5 years.  But, we remain defiant!  We could never repay the generosity and love that we have received, but we thank you all from the bottom of our hearts and hope to pay it forward and help end all of childhood cancer one day.
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Update 8
Posted by Gordon Gibson
2 months ago
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Friends, Emilie finally made it to San Francisco to begin the next phase in her treatment. Today she will get the first injections as she begins this phase in her war against, what she called the other day, "Darth Tumor". She is not excited about needles, blood draws and more MRIs, but she told the doctors she would do whatever to get that tumor out of her brain.

This will still be a long war. She will have to travel back and forth to SF a lot. None of this would be possible without all of your love and generosity. Please follow her adventures on her Facebook page, "Friends of Emilie Gibson". Thank you for helping give Emilie a fighting chance. We love you all!
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Update 7
Posted by Gordon Gibson
3 months ago
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Dear friends, we hope you have had a Merry Christmas. Our has been up and down. First if you are on Emilie's Facebook page you know that she was headed to a vaccine trial in San Francisco. That news got more than 30,000 views! We were excited as she was finally heading for treatment. Well, 24 hours later that changed and 2 hours before we were to fly out on Christmas day we received the official word to stand down. The SF crew want to run some tests and delay things a bit. We understood but were very disappointed and quickly cancelled our flight. We pray that all is well with the trial and Emilie will be on her way soon. If not, she has already been accepted to London. Please keep sharing this GoFundMe request with your friends and help Emilie get to her cure. Also, if you haven't liked her page, please join her on her journey at "Friends of Emilie Gibson". We hope to hear good news from SF later this week and we will post there. Thank you all!
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Update 6
Posted by Gordon Gibson
3 months ago
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Dear friends! We are waiting on our Christmas miracle. Next week, Emilie will undergo another MRI and on December 23rd we should learn if her tumor tested positive for the H3.3 mutation that San Francisco's vaccine trial is targeting. If the MRI shows no progression AND if her tumor is the H3.3, we'll be in San Francisco the following week and Emilie will get 2 shots and we'll fly home immediately. Then the plan will be to repeat that trip every 3 weeks for the next 6 months and then every 6 weeks for the remainder of the 4 years of the trial. That is a lot of shots and a lot of plane rides. We still need your help to make that happen. Nearly 190 have donated to this campaign raising over $18,000! Please help us break that 200/$20,000 level!

We also have several fundraisers in progress that you can join -

Through Emilie's Facebook page there is a link to buy her "Believe" t-shirts! There is only 13 days left, so hurry!

Saturday, December 17th - Cody Cooke and the Bayou Outlaws will be playing at Time Out. Bring a toy because this event will help Operation Santa as well as Emilie.

December 22nd - Chick-Fil-A on Airline and I-220 will have a benefit supporting Emilie from 5-8pm! We would love to see you all there!

Finally, in January, Kingston Elementary will be hosting a virtual archery competition! What a unique event!

Thank you to everyone for helping to support Em! She is doing great right now. We've seen signs that remind us that the tumor is still there and we are on edge as we sit and wait for our Christmas miracle. But, we believe in miracles and are determined to win this fight and "Just keep swimming!"
Emilie is our Christmas miracle!
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Update 5
Posted by Gordon Gibson
3 months ago
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Dear friends! If you haven't heard, Emilie's tumor has shrunk by more than 50%! She is truly amazing and we have renewed hope. Now we are pivoting to the next phase in her treatment. On Monday we have a 1pm conference call with London. Meanwhile we are waiting on results from tests on her biopsy to see if she qualifies for a vaccine trial in San Francisco. And NY is reviewing her latest scans for their trial. We still don't really know where she will be. We are excited that she did so well with radiatiin, but we know that just buys a little more time before the tumor comes back like a monster. We still have a long way to go to reach her fundraising goal so please share this. More than 150 people have helped raise just over $16,000. If each of you can get 10 friends to donate $20 then we'll get halfway there. Thank you for your generosity, love and support for Emilie.
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Read a Previous Update
Brenda Atkins
3 months ago

Lord , We praise you and thank you for your healing power. I pray that the cancer is in complete remission the next time that they scan Emilie's body, in Jesus name. I also ask you Lord to show this family your undeserved grace and mercy during this time. Have this challenge bring them closer to you and show them that you are the way, truth and the life. Emilie's life is precious and I know that you love her dearly. I ask that you be glorified, Lord. Invade the cancer cells and bring her to complete restoration in Jesus name. I command any pain and worry to be gone right now. Lord you are the great physician, and we ask right now that you intervene. We praise and love you Lord, in Jesus name.

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James Marinoni
3 months ago

https://youtu.be/rBUGVkmmwbk

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$33,421 of $100k goal

Raised by 267 people in 4 months
Created November 29, 2016
MM
$100
Marla Moore
25 days ago

Praying for you and your family. We serve an awesome God who can perform miracles and heals daily.

KO
$25
Kristen Ogden
1 month ago
AB
$2,500
Addison Branton
1 month ago
AB
$100
Angela Brooks
1 month ago
$20
Anonymous
1 month ago
BM
$50
Blake McNeal
1 month ago
$100
Anonymous
2 months ago
AG
$50
Alicia Gehrls
2 months ago

Praying for Emilie and your family!

CO
$500
Claudia Oliver
2 months ago
AF
$20
Anna Fish
2 months ago
Brenda Atkins
3 months ago

Lord , We praise you and thank you for your healing power. I pray that the cancer is in complete remission the next time that they scan Emilie's body, in Jesus name. I also ask you Lord to show this family your undeserved grace and mercy during this time. Have this challenge bring them closer to you and show them that you are the way, truth and the life. Emilie's life is precious and I know that you love her dearly. I ask that you be glorified, Lord. Invade the cancer cells and bring her to complete restoration in Jesus name. I command any pain and worry to be gone right now. Lord you are the great physician, and we ask right now that you intervene. We praise and love you Lord, in Jesus name.

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James Marinoni
3 months ago

https://youtu.be/rBUGVkmmwbk

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