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Elizabeth's brain tumour journey

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Hello,  some of you who read this may already know of our story and what we are going through lately and some of you will not. My name is Kandise Adams, I am Elizabeth's elder cousin and I am hoping this page will shed some more light on our situation as of late. Elizabeth (Lizzy) as she is known to by many, is a kind and considerate 13 year old S.C.C pupil and Conyer residant who has a heart of gold. Those closest to us will be aware that she has also delt with 'Global developmental delay' and 'Auditory processing disorder' since she was young, something that has always made her seem so innocent  and timid which has made this all seem even more unfair.  Throughout Feburary of this year we started  to notice Lizzy was having a slight personality change. She became quieter and was less interested in interacting with others. She also became more unbalanced and slurred her words whilst talking and found it more difficult to have conversations. My aunt Mary Adams (known as Kath to most) and my uncle Elizabeth's father Gavin Attrell decided to contact S.C.C and learnt that Elizabeth had been experiencing similar symptoms at school such as the falling over and had started to find it difficult to write on lines during school hours . My aunt took Elizabeth to their family doctor, who then sent them to William Harvey hospital for a MRI scan on 03/04/17 where they discovered a mass on her brain. After being taken by ambulance straight to King's College hospital in London and spending a number of days/nights it confimed our fears that Elizabeth had a brain tumour. Although this information was already a blow to our tight knit family we remained positive for my aunt and Elizabeth's other siblings, she has five siblings as follows; Rylie (15), Charlie (14), Gipsy (10), George (6) and Lanie-Rai (2). (Elizabeth with her siblings before her diagnosis.) As you could imagine it has been extremely hard, not only on ourselves and the children who range from young teenagers to infants, to process as they each have different understandings of the situation and the fact that Elizabeth is sick. On 10/04/17 King's College conducted a biopsy which caused a further blow, Elizabeth has Stage 4 'Glioblastoma of the Brainstem'. It has since been arranged for her to start treatment at 'The Royal Marsden hospital' which will involve a mininum of 6 cycles of chemotherapy which she will recieve once a day for five days, followed by a 23day break, repeated every four weeks. During this gruelling schedule she will also be treated with a course of radiotherapy, which will leave her often feeling neasous and tired. (Still laughing throughout it all) The hope for this treatment is that the chemo can contain the cancer and the radiotherapy can shrink the tumour (where the tumour is located it is inoperable). Unfortunatly prognosis of Elizabeth's type of cancer is not great and we are currently unsure of what the future holds for Elizabeth and her day to day life. We are all deverstated by this illness and it has hit us all. My aunt is the best mother I know and has been a mother figure even to myself, she helps everyone in anyway she can and even during this testing time has remained strong for Elizabeth and her five siblings. So I hope me writing to you can in someway help this young family gain more experiences without having to worry about the funds to do so and to help regain some form of normality again even if it is for a brief periods of time. Funds would also allow us to help with modifications that need to be adjusted within the household. Our main goal and purpose is ultimely for them to enjoy their moments as a family and build many more happy memories.  Thank you all x

Donations 

  • Paul Cragg
    • £30 
    • 6 yrs

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Kandise Adams
Organizer

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