Eileidhs Journey Bucket List ❤
Eileidh is 5 years old & is fighting neuroblastoma for the 3rd time.
She was diagnosed in May 2014 with High Risk Neuroblastoma. The primary tumour was on her adrenal gland, with secondary (metastatic) tumours in her pancreas, lymph nodes, bone marrow & jaw. After 1 year of intense frontline treatment, she was declared NED (no evidence of disease) & began a clinical trial in USA to try & stop it from coming back, as neuroblastoma has a 60-80% risk of relapse.
Unfortunately, 11 months into her USA trial Eileidh relapsed for the 1st time in May 2016 after finding another tumour in her jaw. She then began extremely harsh chemotherapy with horrendous side effects, which got rid of the tumour, but 9 weeks before she was due to finish treatment, in January this year, Eileidh relapsed for a 2nd time, with more tumours growing back in her jaw & lymph nodes, as well as having disease in her left femur & right side of her pelvis. She began chemotherapy but after 2 blocks it was clear it wasn't working. Eileidh is currently receiving radiotherapy & will hopefully be eligible for a trial in London soon.
Unfortunately, Eileidh's oncologist has said she will not survive long term. Even if they manage to get rid of these tumours, they will grow back again but quicker & more aggressively & there are few treatment options left for her when that happens.
We want the remaining time with Eileidh to be as special as possible & allow her to experience as many things as she can. Eileidh deserves to have the world & if we can give her a fraction of that, then we will. Please help us to create as many memories & allow her to enjoy as 'normal' a childhood as she can. She had spent the majority of nearly 3 years in hospital, at appointments, given countless toxic chemotherapies, scans, cannulas, hickman lines, surgeries, anaesthetics, blood tests.... the list is endless.
Anything we can do to make her life that little bit easier, comfier & most importantly magical, then we owe that to her & she most certainly deserves it. Eileidh is the bravest little girl in the world & is definitely a superhero. Whether it's decorating her bedroom bright pink (her favourite colour), a TV for her room so she can stay in bed when she's poorly, a trip to the zoo, or taking her to Disneyland Paris (since Tigger didn't sign her book), it would mean the world to us. Anything to see her smile & hear her laugh is priceless to us as these are the memories we want. These are the memories we need.
As neuroblastoma is such an aggressive type of childhood cancer, things can change very quickly & she may become too ill to travel far so we need to make the most of every single day but she is an extremely stubborn little girl & will never give in without a fight!
* Marry Harrison
* Swim with mermaids (organised)
* Swim with dolphins
* Play on a beach
* Water park
* See real snow for the 1st time
* Bedroom make over (organised)
* Short breaks/holidays, especially involving aeroplanes
* Blackpool Illuminations & www.illuminasia.co.uk
* London Eye
* Zookeeper for a day
* Play equipment/swing & chute for garden
Things will be added when I think of other things
R.I.P-PRINCESS EILEIDH ROSE,YOU FLY HIGH WITH YOUR BRAND NEW ANGEL WINGS.SUCH A BRAVE WEE GIRL EVERYONE LOVED.SENDING OUR CONDOLENCES TO YOUR MUM AND YOU FAMILY.NIGHT NIGHT SWEETHEART,YOU ARE TGE BRIGHTEST STAR IN TNE SKY TONIGHT.GOD BLESS YOU DARLING,PLAY WITH THE OTHER ANGELS NOW.YOU WILL ALWAYS BE REMEMBERED FOR YOUR TOUCHING BUCKET LIST AND NOT FORGETTING YOUR WEDDING, BEAUTIFUL LITTLE GIRL SLEEP TIGHT XXXXXX
There is some new science with potential links of cancer as a metabolic disease using a ketogenic plan. This was actually created by Mayo Clinic for intractable childhood epilepsy initially but I have read of success with cancer. Google cancer and ketogenic, doesn't hurt to at least look it up! I've read cancer cells require glucose to proliferate and ketosis "cancels" that conversion. Just a suggestion... you never know.