Help For Skylar!

My daughter Skylar was diagnosed with Sly Syndrome when she was 2 months old. Only 150 people in the world have this rare disease, and she’s one of the first cases on the East Coast of the US. Her story was featured on WSOC9 in Charlotte, NC and got the attention of the only company who manufactures a medicine for her disease! She has been blessed to have been able to receive this medicine, but now we need more help!

Skylar’s condition requires her to have specialized equipment, formula and specialists to provide her the best care! Any donation is welcomed ❤️