Dylan's Bucket List
Hello. My name is Michelle and I am Dylan’s mother. Dylan VanOrmer is a 14 year old amazing boy who has been living with medulloblastoma which is a rare type of brain tumor. Dylan was first diagnosed in May of 2007. He has been a patient at St. Jude’s Children’s Hospital in Memphis for much of these past 7 years. The cancer reoccurred in 2012 and again just recently, spreading to the point where he now has months, not years ahead of him. Dylan has so much he wants to accomplish and with your help we can get some of these items checked off of his bucket list. They include: skydiving, travel out of the US, drive a car and motorcycle, go to LegoLand, go deep sea fishing, ride a hot air balloon, driving a Segway, swimming with dolphins, further developing his artistic talents with art supplies, hunting, riding on top of an elephant, and set the ugly picture on fire (a picture of him and his siblings that is above the mantle that all three children do not like—I agreed to letting him have a smaller version for this purpose. The picture is below).
Our goal is to raise $15,000 which would basically cover all of the expenses associated with these activities for Dylan and his immediate family, and will help with house hold expenses as I cut back my work schedule from 5 days to 4 days to spend more time with him. If there is extra raised it will go towards continued household expenses when I eventually need to take a leave of absence to be with Dylan. Dylan lives in Rolla, Mo. with his mom, Michelle and older brother Dalton. His Dad, Dale, lives nearby and his sister Ciara is away at college.
To read more about Dylan’s story please go to http://www.caringbridge.org/visit/dylanmvo. You can also check out Dylan’s Facebook page at Dylan Vanormer.
On behalf of Dylan and his family we all greatly appreciate your donations and prayers. Dylan’s smile will melt your heart and he has been so brave and courageous throughout this journey. He has a dry sense of humor and charm that has touched each person who has met him in such an incredible way. We love him so much and want to make as many special moments for him as possible.
Vacation went well, and everyone had a great time. We flew into Miami and went on a seven day cruise--travel out of the United States--check. We hardly saw Dylan, he participated in the teen group activities which were usually scheduled through 1am. There was a ropes course that included a plank and rock wall which Dylan did a few times. The shore excursions included riding a horse along the beach and taking them into the ocean, para-sailing, snorkeling in a cove frequented by sea-turtles, and walking in a shark tank. Following the cruise we drove up to Orlando, but stopped 1/2 way along the way to stop in and visit with a class-mate from high-school who was going to take Dylan deep-sea fishing. Unfortunately, the seas were to high/rough to go fishing (even the charted boats were docked), however, we were still able to go out in the boat and Dylan got to drive the boat--fast, and do some fishing. Once in Orlando, we spent a day at Discovery Cove where he swam with dolphins--check, and snorkeled with stingrays; the following day we went to LegoLand--check, then an easy down day to rest which involved going out to eat crabs; the last full day we spent going to SeaWorld. We also upgraded the rental car to a sports car which Dylan loved, and grumbled about missing the car while driving home in our car. We got home late at night, and had one down day before driving to go to a circus, for Dylan to ride an elephant--check. The following day, Dylan went to St. Jude for scans.
Scans were not what we were hoping for--hoping that things would have had no change (or even better shrunk a little). Scans showed that there was tumor growth, however it is slow and there was not multiple new areas--one area flagged to be monitored but looking on the past MRI there was shadowing present and it is in an area that had surgery and radiation so could be scarring from that, and the spine are was not larger but did show up a little more--could be slight difference in machines etc. We decided to not start the next round of chemo, and see if there is another oral (at home) option to consider/try. Hopefully, we will know by next week. Dylan did get to celebrate Bullseye's 15th birthday at Target House and the hospital which he enjoyed.
We are home for this wknd, but travel next week to Chicago by train, and have a few things planned to include seeing the Blueman Group.
I am planning on getting some photos up this wknd.
Thank you so much for helping make this possible.
Hi, we met you guys at St. Judes we are in a different clinic so Andrew and I don't get to talk to you or dylan much. If he feels up to it, let me know if your family wants to get together and do something.
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This lil boy is such an inspiration. I will always remember him com Oh ng into caseys on 10th street for his slushie and pizza.