D.I.P.G patient Jayvis Ilar
Donation protected
Aloha I’m Jason, Jayvis’s Dad(step dad). My son who just celebrated his 14th birthday on October 19, was diagnosed with a rare brain tumor condition called DIPG. It spells out to very spooky sounding scientific ! No cure! 40 years of being in the know of this killer of kids and young adolescents! Being diagnosed with DIPG is basically being diagnosed with certain death within 9 months, certain death 9 months. That’s after undertaking radiation of course! Only 300 kids in the US are diagnosed every year! We live on Oahu, not much options. But we do have high hopes and faith in God’s promise! We put it in his will and stand true to whatever God has in store for us and accept it with the knowing that it is his will. We are not only raising funds to help us recoup from staying home to tend to our sons sudden misfortunate fate, but we’re starting a campaign to raise awareness and fund studies of natural healing practices for fighting this child snatching beast called DIPG!! Quick run down of how fast this monster works-Jayvis’s eyes looked like he was stoned Monday10-6-18, jayvis starts stumbling 10-14-18, jayvis diagnosed with DIPG 10-23-18, Jayvis sees oncologist 11-5-18 finds out radiation might be best bet for longest life expectancy (9months)! Set appointments for treatment on11-12-18. Today Jayvis went to attend the Bruno Mars concert in Oahu, thanks American carpet one for providing him with vip$700 seats. The pic is him right before he left. Gets rushed to hospital at 5pm, didn’t even make it through the door to concert! Now he is in the PICU fighting for tomorrow. It’s in God’s hands! Mahalo in advance for your support we appreciate it and we will find a cure with your help!!!!!!!!!!!!!!!! GOD BLESS! Mahalo to all the people involved with jayvis and this monster, God for blessing us with Jayvis and his amazing soul, Jesus for saving us all, Kaiser, Kapiolani,st. Frances all the staff we appreciate you all, all of our family always there, friends, Metro Christian church mahalo you guys have been amazing thank you, pastor Brandon & Erwin, Pete and Hazel from our couples devo group mahalo. If we missed anyone our sad, no ones perfect 65% of what we fundraise is going to the J6 DIPG foundation, we will fund families in Hawaii who are struck with this unforgiving condition to provide everything we possibly can to provide them with a comfortable life while they battle DIPG.
Love
the Kawamoto’s
Love
the Kawamoto’s
Organizer
Jason Kawamoto
Organizer
Kaneohe, HI
