Diana Pratt vs. Breast Cancer (IBC)

$10,145 of $15,000 goal

Raised by 86 people in 20 months
WOW, how do I start. Heres my story and what lies ahead of me. I came home from a long work week of travel and it was my first night in my bed, and my female doberman missed me so she decided to sleep at the foot of my bed. That morning she hit my right breast with her paw as i was playing with her in the morning and i felt a strong pop. With in a few months I developed a red rash, in which made me go in for a check up.  I found out on Nov 1st after a biopsey came back postive for Inflammatory Best Cancer ( IBC), it grows fast its unlike other types of breast cancer.  1-4% of woman with breast cancer have this type, it is the rarest, most aggressive and dangerous form of breast cancer. The absence of a lump or mass makes it hard to detect by a mammogram and therefore can spread undetected. I have been getting mamograms every year along with a yearly check up. IBC enters the skin and lymph vessels of the breast. It is important to seek treatment for IBC at a clinic that specializes in IBC. Well, MD ANDERSON in HOUSTON TX is the one place that does this. I am not working in the field anymore, however I still work from home as most of you know how passionate i am about my job/industry. Moreover, what I make does not cover out of state care in Houston, so I need to raise funds to get myself there for surgery, follow up care, radiation therapy, and conitued chemo for a year and finally removal of my second/healthy breast.  All of this depending on how much I raise! I have completed 7 rounds of chemo and I have two more to go.  I will have one breast removed first then the other 6 months after radiation is completed. After surgery I will remain in Houston for 2 weeks. After the 2 week period I fly home and do physical therapy for 2-3 weeks before flying back to Houston for radiation therapy. Its also very differnt as I will need radition therpy 2X a day for 4 1/2 weeks - 44 treatments along with getting back to chemo. 6 months after radiation I go back for the second breast removal. I want to express that I am struggling with being away from my boys so MD ANDERSON has been working with my FL Oncologist but I am definitely having the surgery and follow up care in Houston. The WAR ends for me when the docs say I am free and clear of my tumor markers. For those that want to know, breast cancer is broken up into three categories those patients that are HER2 positive (named after a receptor found on the cancer cell), estrogen/progestosterone positive (again receptors that are found on the cancer cell), triple negative (cancer cell that is void of receptors). The advancement of cancer therapy has been in the development new chemo agents targeting HER2 receptors. 15 years agao IBC had a 100% mortality rate, today if your HER2 positive and responding well to chemo and the cancer has not spread then those statics have improved to 50% that an IBC patient makes it to the 5 year mark and 30% to make it to the 10 year mark (I plan on being one of the IBC survivors!). If you would like to learn more

https://www.mdanderson.org/cancer-types/breast-cancer/breast-cancer-facts.html

I have so many other details that I hope to share and hopefully I will get to do just that with all my friends. Lastly, I am staying positive/strong but understand this is not easy for me, simply asking for help, trust me to the core would rather be giving than asking for help.


MUCH LOVE DIANA
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Here's my update, I am still healing from the right breast removed. Currently going to physical therapy every day in the early morning to help me move my shoulder around and break up the scar tissue. I was unable to get any type of spacers for future reconstructive work. As IBC, does not give you this option. I can not have the left breast removed for 6 months. However they found a small cluster of cells in the left breast in which I am set to get a biopsy done to see where I stand with that. Yes, it possible to have two types of cancer. I was blown away by this, however I stand that its NOT CANCER, simply calcium clusters and cells that collapsed from chemo!!! I am now getting continued chemo with a targeting drug called HERCEPTIN- this for women that are HURT 2 Positive, which is what I am ( THANK GOD) . For a bit of education currently women who test for breast cancer and are HURT2 negative there is no treatment. Its heart breaking to know this as I know women currently with Breast cancer and they have no target treatment ... My Oncologist, is amazing she said to me yesterday... I have been at WAR --- my body is healing from combat and now getting ready to go back. It made me laugh and sigh at the same time-- I start Radiation tomorrow as I will find out what my plan will be and for how long. I cant lie I am so tired of not feeling well or hurt :(
Typically Radiation is 2x a day, they may only do 1x a day and I am not sure for how long. I am hoping one time a day will be the plan as that may be better for me on the body.
My hair is starting to sprout back...loll it looks so funny to see dark hair coming in, not my blonde color..loll let me add I struggle with trying to get dressed as I have one boob...its a bitter sweet moment for me each time I am getting dressed.. I am looking forward to removing the second boob, so I can be balanced.. its like matching your BRA with your underwear...loll

I am reading that doing reconstructive surgery may not be an option for me.

I will, keep updating my progression.. however PLEASE if you haven't gotten checked Please do as well as having love ones. Remember Cancer can effect all of us in some way..

Love Diana
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My update, tuesday was my last round of chemo. I completed 8 rounds in which were done every three weeks. EACH round of chemotherapy cost 27k per treatment. (THANK GOD FOR INSURANCE ) I had my first round November 11th 2016. It's been a long road regarding treatment. You can't even imagin how sick you get and the beat down your body goes threw in order to attack the cancer cells. I am still in bed as I will be here for approximately 8 days till I turn the corner. I typically get a shot after each chemotherapy that pulls from my spine white blood cells. It's called Nulasta, you may have seen this advertised on TV. ( THAT LITTLE SHOT IS 7K) Well, I did not make it to get the shot as I was to sick to get out of bed. It typically makes you even sicker and is hard on your spine, neck and hips. You feel like you have the flu on top of chemo. I wanted to give a splash of education along with an update. My next 4 weeks will be working on getting strong for my up coming surgery in May.. I can't wait to remove the breast. This will be my second phase in the fight against cancer. After that I will have 3 more phases to go to win the battle.
My first day of chemo
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I want to say THANK YOU for everyone's support regarding this fund me page thus far. Today I had great appointment that has me getting a PET scan & Ultra sound to see the progress of 7 rounds of chemo that I have gotten. I am being asked to do 2 more. Well this past one was extremely rough and I have been in bed for 11 days, with reactions regarding this past chemo blast. I will spare the details on this one... I am set for April 4th for my next chemo treatment. I am in hopes that my scans this week should incredible results as this will fast track me to surgery in May. I still have a really long road ahead of me however one less chemo is what I am praying for.. I need to heal my body from the break down that chemo presents on ones body. I am pleased with my oncologist and her communication with MD Anderson and the Dr in Jupiter that also spoke with the PA at MD Anderson. Its incredible to me to know that my dr's are talking with MD Anderson for my future to kick cancers ass... Love you guys and thank you for continued support..
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Read a Previous Update
Mary Wheaton Poetsche
19 months ago

Halfway there!! Rock on!!

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Monica Dominick Benitez
20 months ago

So sorry to hear this news . I'm praying for your full recovery. My thoughts are with you and your beautiful boys.

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$10,145 of $15,000 goal

Raised by 86 people in 20 months
Created March 22, 2017
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$25
Anonymous
16 months ago
RC
$150
Robert Coolidge
17 months ago

Love ❤️

CB
$100
Cathy Brady
17 months ago

I know it's not much but it's sent with LOTS of love, prayers, hugs, & healthy healing vibes!!! Fight like a girl

LC
$100
Laura Cook
18 months ago

I am so sorry I missed the event tonight. So happy you were up to attending....it looked like a great time. You look amazing in the photos! Keep kicking ass girlfriend

Mary Wheaton Poetsche
19 months ago

Halfway there!! Rock on!!

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Monica Dominick Benitez
20 months ago

So sorry to hear this news . I'm praying for your full recovery. My thoughts are with you and your beautiful boys.

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