Raise For Rose
In many ways a diagnosis won’t change what we are doing to help Rose though. Since September 2012 she has progressed slowly but steadily. We hardly recognise the little girl who became so ill 4 years ago. She can now talk again and started taking her first steps 12 months ago (we're hoping for running and jumping next!!). She is a happy, bubbly little girl, whose humour and understanding of the world around her is fantastic, considering what she has been through.
She has even started mainstream primary school and loves every single second of it!
Unsurprisingly, despite her considerable progress, she is still some way behind her peers in terms of her development. She has some input from both physiotherapy and speech therapy, but the NHS, as supportive as it has been to our family, has no other form of treatment available. The USA does, however, in the shape of the Family Hope Center. This is obviously an expensive course of treatment, which is why we are asking for your help. The FHC has outstanding, proven results and with some hard work we believe that Rose will, one day, in the years to come, catch up with her peers and lead a normal, fulfilling life!!
Well done Rose! We are always thinking of you and are so proud of you! You are absolutely adorable & your photos make us smile when we see them! You are doing so well and are so cute. We just made a special donation which comes with all our love and cuddles too. We just know that you are going to get stronger every day - you have such an amazing spirit and the most beautiful and wonderful Mum & Dad and family behind you! Big hugs to you all over there from us all over here in Australia. Looking forward to seeing all your photos on facebook as you start school soon! Very exciting. Lots of love from Lin, Brian, Jo, John, Wilson, Darren, Lorena, Cohen and Kiana XXXX
We can't donate I'm afraid as we have had to raise money for our own child through gofundme and may have to again. I just wanted to say Rosie is gorgeous and I wish you all the luck in the world, she seems to be doing amazingly. As our neurologist always tells us, it's all about progress and she seems to be making heaps of that! My son also has epilepsy but a rare form, he has been progressing well until recently and I wonder if FHC may be something we could look into. So I just wanted to say thank you for raising awareness of their centre as it gives me hope that if we continue to have problems there are other places we can go. I wish you and your family all the best, I hope Rosie continues to surprise you x
Happy to help you and beautiful Rosie. I'm a health advocate - I know a little boy with v similar symptoms to Rosie and he is having specialist one to one care in the UK (privately) his progression is excellent. As well as promote your page I would be happy to try and link you up with his family. Just drop me a line here or at work www.pamelanorthcottfund.org.uk xx
This beautiful girl is the light of our lives. Thank you a million times over to everyone. Nana and Pop xxxx