Raise For Rose

£15,970 of £20,000 goal

Raised by 425 people in 60 months
Rose is our daughter.  She is 6 years old. For the first 15 months of Rose’s life she developed like every other little girl. She was crawling, had started saying a few words and was a happy, healthy child. However, in September 2012 everything changed. Rose began to show signs of regression; she stopped crawling, talking, smiling, laughing and even crying. As if this wasn’t distressing enough, she then simultaneously developed epilepsy. After initially checking (and eliminating, thank goodness) a brain tumour she spent a week in Alder Hey Hospital in Liverpool undergoing tests. Tests on Rose’s DNA are still on-going.

In many ways a diagnosis won’t change what we are doing to help Rose though. Since September 2012 she has progressed slowly but steadily. We hardly recognise the little girl who became so ill 4 years ago. She can now talk again and started taking her first steps 12 months ago (we're hoping for running and jumping next!!). She is a happy, bubbly little girl, whose humour and understanding of the world around her is fantastic, considering what she has been through.
She has even started mainstream primary school and loves every single second of it!

Unsurprisingly, despite her considerable progress, she is still some way behind her peers in terms of her development. She has some input from both physiotherapy and speech therapy, but the NHS, as supportive as it has been to our family, has no other form of treatment available. The USA does, however, in the shape of the Family Hope Center. This is obviously an expensive course of treatment, which is why we are asking for your help. The FHC has outstanding, proven results and with some hard work we believe that Rose will, one day, in the years to come, catch up with her peers and lead a normal, fulfilling life!!
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A date for your diary folks! We're hosting a 'Races for Rose' charity sports day (for children and adults alike) on Saturday 15th July at the University of Chester. Sporting prowess is by no means necessary (mainly because I don't have any...) as most of the races will be about having a giggle - egg and spoon, beanbag balance, obstacle etc). There will also be refreshments and hopefully a raffle! More information to follow in the coming months...
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And so the unbelievable kindness goes on!!!! On the 11th September our friend Anna McDougall Will be running her first ever half marathon in aid of Raise for Rose. The Wirral half starts in birkenhead and finishes in New Brighton. Any support for Anna would be massively appreciated!! Likewise if anyone would like to sponsor Anna that would be greatly appreciated too!!!!! Good luck Anna and thank you so, so much for doing this for Rose
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Can you believe that today is the second anniversary of Rose's fund??!!! We have raised well in excess of £16, 000 in those 2 years (not all the monies raised have appeared on the Go Fund Me page of course!); through sponsored runs, bike rides, quiz nights, coffee mornings, summer fairs, concerts and so much more. THANK YOU, THANK YOU, THANK YOU to everybody who has donated and supported our family through these 2 years - we are so blessed to be surrounded by such wonderful human beings. What could have been a very difficult time has actually been one of the most positive experiences imaginable. Rose's progress has been phenomenal and it's all thanks to you. Jo and Matt xxxxxxxxxxxxx
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So today is the day folks!!!!! Ben is racing in the Brompton World Championships in London! Thank you so SO much to all those who have already sponsored him. Here's the link to Rose's fundraising page if you haven't had a chance to sponsor him yet and would like to!!!! Hope the sun shines on you Mr. Hultum...GOOD LUCK!
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Read a Previous Update
Joanne Avis
40 months ago

Well done Rose! We are always thinking of you and are so proud of you! You are absolutely adorable & your photos make us smile when we see them! You are doing so well and are so cute. We just made a special donation which comes with all our love and cuddles too. We just know that you are going to get stronger every day - you have such an amazing spirit and the most beautiful and wonderful Mum & Dad and family behind you! Big hugs to you all over there from us all over here in Australia. Looking forward to seeing all your photos on facebook as you start school soon! Very exciting. Lots of love from Lin, Brian, Jo, John, Wilson, Darren, Lorena, Cohen and Kiana XXXX

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Carola Breakspear
40 months ago

We can't donate I'm afraid as we have had to raise money for our own child through gofundme and may have to again. I just wanted to say Rosie is gorgeous and I wish you all the luck in the world, she seems to be doing amazingly. As our neurologist always tells us, it's all about progress and she seems to be making heaps of that! My son also has epilepsy but a rare form, he has been progressing well until recently and I wonder if FHC may be something we could look into. So I just wanted to say thank you for raising awareness of their centre as it gives me hope that if we continue to have problems there are other places we can go. I wish you and your family all the best, I hope Rosie continues to surprise you x

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Kate Northcott
60 months ago

Happy to help you and beautiful Rosie. I'm a health advocate - I know a little boy with v similar symptoms to Rosie and he is having specialist one to one care in the UK (privately) his progression is excellent. As well as promote your page I would be happy to try and link you up with his family. Just drop me a line here or at work www.pamelanorthcottfund.org.uk xx

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Suzanne Lamont
60 months ago

This beautiful girl is the light of our lives. Thank you a million times over to everyone. Nana and Pop xxxx

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£15,970 of £20,000 goal

Raised by 425 people in 60 months
Created August 23, 2014
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GJ
£335
Gerry Johnston
1 month ago

I completed the Wirral Coastal Walk on 23rd June, soaking 15 miles from Seacombe to Thurstaston Country Park. This is the sponsorship money I have collected so far. Thanks to everyone who kindly sponsored me and my friend Mel who not only sponsored me but joined me on the walk

LG
£20
Louise Grant-Jones
2 months ago
KR
£30
Kerry Randall
4 months ago

Well Done to Mike for another marathon! Raising for Rose! X

AC
£15
Amy Cross-Menzies
5 months ago
GJ
£18
Gerry Johnston
6 months ago

For a very special sparkling diamond!

AC
£10
Amy Cross-Menzies
8 months ago
RT
£16
Riverside Green Impact Team
16 months ago
KR
£30
Kerry Randall
16 months ago

Well done to Mike for running the Paris marathon! X

LH
£78
Lauren Holmes
16 months ago
DD
£10
Diane Dennis
18 months ago
Joanne Avis
40 months ago

Well done Rose! We are always thinking of you and are so proud of you! You are absolutely adorable & your photos make us smile when we see them! You are doing so well and are so cute. We just made a special donation which comes with all our love and cuddles too. We just know that you are going to get stronger every day - you have such an amazing spirit and the most beautiful and wonderful Mum & Dad and family behind you! Big hugs to you all over there from us all over here in Australia. Looking forward to seeing all your photos on facebook as you start school soon! Very exciting. Lots of love from Lin, Brian, Jo, John, Wilson, Darren, Lorena, Cohen and Kiana XXXX

+ Read More
Carola Breakspear
40 months ago

We can't donate I'm afraid as we have had to raise money for our own child through gofundme and may have to again. I just wanted to say Rosie is gorgeous and I wish you all the luck in the world, she seems to be doing amazingly. As our neurologist always tells us, it's all about progress and she seems to be making heaps of that! My son also has epilepsy but a rare form, he has been progressing well until recently and I wonder if FHC may be something we could look into. So I just wanted to say thank you for raising awareness of their centre as it gives me hope that if we continue to have problems there are other places we can go. I wish you and your family all the best, I hope Rosie continues to surprise you x

+ Read More
Kate Northcott
60 months ago

Happy to help you and beautiful Rosie. I'm a health advocate - I know a little boy with v similar symptoms to Rosie and he is having specialist one to one care in the UK (privately) his progression is excellent. As well as promote your page I would be happy to try and link you up with his family. Just drop me a line here or at work www.pamelanorthcottfund.org.uk xx

+ Read More
Suzanne Lamont
60 months ago

This beautiful girl is the light of our lives. Thank you a million times over to everyone. Nana and Pop xxxx

+ Read More
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