Blessings for the Baker Family

$38,061 of $100,000 goal

Raised by 327 people in 46 months
On Sunday, August 10, 2014, 15 year old Amanda Baker started complaining of some pain in her neck that ultimately became severe enough to prompt her parents to take her to the emergency room. Within hours, Amanda could no longer stand up and by the following evening she was paralyzed from the chest down. This was just the beginning of the medical nightmare that Amanda and her family are now living. Days after her paralysis set in, with physicians still unsure of the cause, Amanda suffered a pulmonary embolism and went into cardiac arrest multiple times. She was intubated and has been on life support in the pediatric cardiac intensive care unit since. This past Thursday, Amanda had yet another MRI and the physicians now believe (although are admittedly not 100% certain) that Amanda is suffering from transverse myelitis which is a swelling of the spinal cord. She is currently undergoing a treatment called plasmapheresis which will take ten days; it is unknown if this treatment will reverse any of her paralysis. With everything Amanda has been through thus far, physicians are telling her parents she is facing as much as a year or more of recovery and that is still without knowing whether or not this treatment will cure any of the paralysis or help her to regain consciousness.

Through all of this Amanda’s parents, Karen and Jeff, have been by her side, day and night. This of course means that they are not working and vacation and sick days have been drained. Complicating matters further, Amanda's father has been dealing with a recent failed spinal fusion surgery resulting in loss of income for nearly a year and the multiple surgeries required to resolve his spinal condition have been put on hold. Jeff has also been forced to exhaust his retirement funds by early withdrawal. I am establishing this fund for the Baker family in an effort to help alleviate some of the financial stress this situation is causing.

Although Karen and Jeff are currently living every parent’s nightmare not knowing exactly what is wrong with their child, how it will be treated and what the prognosis will be, Amanda’s younger sister Elizabeth struggles as well. Elizabeth is dealing with all honors classes in her first year of middle school while traveling to the hospital in Tampa after school in order to keep contact with her mentor and big sister.

Amanda, an honors student and accomplished musician aspiring to forge a career in biochemistry, was due to start her sophomore year of high school just a week after this cardiac event. Prior to this medical mystery, Mandy's biggest obstacle for the year would have been learning the new musical arrangements of marching band, managing her time between playing guitar, saxophone, oboe, or flute and ultimately passing her drivers exam, but now this amazing young lady finds herself fighting for her life.

I thank you for taking the time to read this, for your prayers for this sweet family and for considering a donation.
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Mandy is continuing go through a process of receiving Botox injections to help relieve painful and damaging muscle contractures she has in both arms. She is also suffering from a similar condition in both feet as well as her neck. At this time we don't know what the best option is going to be to try and relieve those other areas yet but she will most likely have to endure several surgeries in order to help. She has been fitted with a cast on her right arm that was replaced every week or so to try and slowly stretch that arm and wrist back to a more normal position. We can't thank everyone enough for the prayers and support you have given our family. Unfortunately we still have to ask or help from anyone able to do so because our financial situation has reached the most dire point since this all began. We are trying desperately to not lose our home since this is everything we have put in place to care for her. Because we have been unable to pay our property taxes on time the mortgage company has now changed our payment to nearly double what we used to have to pay when we had two incomes. If anyone can help or at least share with someone else that can it will be very appreciated more than you could know and I promise you when our situation turns around we will do everything we can to repay those for their help and continue to pay it forward. Thank you so very much and God bless each and everyone of you.
Mandy's first cast.
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Mandy's specialized hospital bed has malfunctioned and completely broken down. We are in desperate need of at least $1,500 to have it repaired in next 2 weeks. We are praying God can bring forward any donors that may be in a position to help. Thank you to everyone for the prayers and any possible donations. God Bless!
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Please take a moment and watch the video on Mandy's Story. We are at a desperate time regarding funds and we pray that someone in a position to help can please donate. Mandy hasn't been able to have the high/pure doses of special fish oil for brain tissue recovery ($180/mo.) for months now and neurostorming is beginning to return. We desparately need a dependable wheelchair van so that Mandy doesn't miss crucial appointments and can actually go to a park with the family or just a day trip somewhere other than her 4 walls. We are trying to build a mobile TV stand so Mandy can have a TV by the bed since she can't view the TV on the wall now that her hospital bed is broken. Her $49k ICU bed is no longer functioning and the manufacturer refuses to service it in our home. If we can finally find someone to repair it, the cost is going to be enormous. We know that there are probably many in likewise financial dire straights and we certainly welcome prayers for our dear Mandy and prayers to hold our family together. God Bless each and every one of you for the continued prayers and warm wishes. Her video can be found on her website as well. www.music4mandy.com
Mandy's Story Video
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Please take a moment and watch the video on Mandy's Story. We are at a desperate time regarding funds and we pray that someone in a position to help can please donate. Mandy hasn't been able to have the high/pure doses of special fish oil for brain tissue recovery ($180/mo.) for months now and neurostorming is beginning to return. We desparately need a dependable wheelchair van so that Mandy doesn't miss crucial appointments and can actually go to a park with the family or just a day trip somewhere other than her 4 walls. We are trying to build a mobile TV stand so Mandy can have a TV by the bed since she can't view the TV on the wall now that her hospital bed is broken. Her $49k ICU bed is no longer functioning and the manufacturer refuses to service it in our home. If we can finally find someone to repair it, the cost is going to be enormous. We know that there are probably many in likewise financial dire straights and we certainly welcome prayers for our dear Mandy and prayers to hold our family together. God Bless each and every one of you for the continued prayers and warm wishes. Her video can be found on her website as well. www.music4mandy.com
Mandy's Story Video
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Read a Previous Update
Kathy Muscarella
20 months ago
2
2

I know your family has been through so much. You deserve all the assistance anyone can offer.Beyond prayers for some how a miracle that could restore your family, I can share I've faced life altering adversity within my own family. There have been moments of unexpected blessings and ones of heartbreak. It has been my experience that Our Lord above has directed our path at times to trans-sect with someone who could provide an answer or some type of support that made all the difference for us. I pray for you to have some of these kind of moments, to lift the burden you have to shoulder, to move toward a future where you can find peace again as a family together. To that end and not to offer info you may already have, have you been in touch with:The Florida Developmental Disabilities Council www.fddc.org 1-800-580-7801. Also try the Olmstead Rights.org site and click on your state for connection to a state resource and advocacy listing.Nationally, there is the Pass It On Center in Georgia 404-894-0541. You may also want to look at Rehab Equipment Exchange.com since they have a link to a group there in Florida. Another program in Georgia is www.gtradeonline.org. If you want to look into a good assistive tech resource try Crotched mountain.org as well since they do have some refurbished medical equipment items too. I would value them for their knowledge base on assistive tech tools which I believe you need for Mandy drastically. The special fish oil is a bit difficult to offer any suggestions since I do not know enough regarding company and type to offer ideas. That said, many drug companies will look at special needs cases and try to find a method where by they can help, like maybe a voucher to off set the total cost. Maybe that could help. I will continue to pray and if you need to or want to communicate, you could message me through my facebook home.

+ Read More
Debbie Carson
13 months ago
1
1

Mr. Baker, we have chatted once or twice, however, this time I wanted you know that I have shared you story with Tripp Halstead Updates. His mom has a share Sunday post she does each week. It is a place to post stories about families and children with special needs. I posted this with the hope that it will help you get your story get out to a wider audience. If you don't feel like it is an appropriate venue to share on, let me know, I will delete it.

+ Read More
Carolyn Myers Wall
23 months ago
1
1

My daughter, Becky Blevins, has told me about your sweet family...I wanted you to know that I hold your daughter in my prayers....hopefully, Gods plan is for a complete recovery but, if it is not, I pray for even the smallest amount of recovery and peace to go along with it...Carolyn Wall

+ Read More
Candy O'Donnell
29 months ago
1
1

My heart goes out to you all. God bless

+ Read More
Debbie Fisher
40 months ago
1
1

Your story touches our hearts, and as I pray for our daughter, Grace every night, I will pray for you and your family. Her story is at posthope.org/gracefisher . Grace also has a sister, Emily and as I pray for Emily, I will remember to pray for Amanda's sister too.

+ Read More
Sherri Harrod
45 months ago
1
1

My son had something similar happen a few years ago just after receiving the flu vaccine. His first symptoms were neck and shoulder pain I though he slept wrong on his neck. Long story short we ended up in the hospital because he began to go paralyzed in his upper body. No one knew what was wrong with him. We were lucky to have Dr. Steven Winesett who figured out that he had Parsonage Turners Syndrome. It was from the Flu vaccine. His body reversed the effects on it's own and he continues to heal from the effects. I will keep your family in my prayers. Dr. Winesett is with all Childrens Hospital and a pediatric Neurologist. I recommend giving him a call maybe he can help?

+ Read More
Paula Myers
1 month ago

Praying for your daughter and your family Jeff Baker!!

+ Read More
Kyesha Rogers
41 months ago

To the Baker family my heart goes out to you all and just know that God is a healer and as you all talk with your daughter speak healing over her body and god will do it I love yall and keep ya mind on God

+ Read More
Heidi Mauter-Hale
43 months ago

Many, many prayers for Mandy and the Baker family.

+ Read More
Lisa Coffey
43 months ago

Just saw the comment below from our cousin, Jamie...wow. Still circulating this link, and always keeping you in thoughts and prayers...Love you...see you soon...

+ Read More
Jeffrey Baker
43 months ago

We are most likely looking at sending Mandy to a rehab center in Jacksonville, FL since we were denied at Shepherds in Atlanta. We will have to come up with about $3000 in transport fees and further time with Karen out of work. Any help is extremely appreciated. Thank you again for all of the support and prayers. God Bless You.

+ Read More
Lisa Sigmon
44 months ago

I only met her once at a funeral and I really enjoyed meeting her. She was so friendly to me. I’m praying Karen.

+ Read More
Jeffrey Baker
45 months ago

Janice, we asked several times and I believe that they did check for lyme. We will be meeting with docs again this week and I will double check but I know that no tick was ever found on her. Chris Turner, could you possibly send me a message via facebook if you have any other details on the coworker or have their family contact me via facebook? Thank you to everyone for the donations and continued prayers. God Bless You!

+ Read More
Chris Turner
45 months ago

I have a co worker that was just diagnosed with this same disease up north. He has good and bad days. Several times they thought they were going to loose him. He still is unable to talk. Is paralyzed from the neck down. I am sending prayers every day for all of these families that are dealing with this awful disease....

+ Read More
Janice Morgan
45 months ago

Please have them run a test for Lyme Disease! You may just be surprised. a lot of docs. don't like to do this because Lyme is a man made illness.. long story!my daughter has this! god bless

+ Read More
Nancy Foster
45 months ago

For anyone who doesn't believe this, please read the article about my niece Mandy in the Lakeland Ledger: http://www.theledger.com/article/20140912/NEWS/140919757 Keep Mandy and her family in your heart and prayers.

+ Read More
Jeffrey Baker
45 months ago

Hello Jamie. Thank you so much for the prayers. Please give my love to Bonnie. I haven't seen her in such a long time.

+ Read More
Justin Dowdy
45 months ago

Jeff & Family, my name is Jamie and my mother, your cousin Bonnie, asked me to send her sympathy, prayers and most of all love. It's terrifying how quickly a life destined for greatness can be sidelined in a matter of minutes, but this is only a small bump on Amanda's path to a full, successful and happy life. They happen and the most important tool in getting through them unscathed is the undying love of a family, and that's something Amanda has in abundance. Growing up I've heard countless stories of Bonnie's time in Florida and her experiences with all of her cousins, and, with 100% honesty, I can say they were all tales of joy that she fondly looks back on. Everyone here in Virginia (your cousins Dale, David, Lisa, Dennis, Neil and Darla, your Aunt Shirley and Uncle Fred (Buddy) just to name some off the top of my head) is thinking about you guys and hoping everyone comes out of this as unscathed as possible. Love to you all, - Bonnie & Jamie

+ Read More
Lisa Thompson
45 months ago

will be praying for you honey God bless you

+ Read More
Jeffrey Baker
45 months ago

I continue to be humbled and amazed at the generosity of such great friends and family. I can't thank you enough for the continued donations and support. This could not come at a better time as this pay period will be my wife's first without any pay. Thank you and God bless you.

+ Read More

$38,061 of $100,000 goal

Raised by 327 people in 46 months
Created August 28, 2014
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Kathy Muscarella
20 months ago
2
2

I know your family has been through so much. You deserve all the assistance anyone can offer.Beyond prayers for some how a miracle that could restore your family, I can share I've faced life altering adversity within my own family. There have been moments of unexpected blessings and ones of heartbreak. It has been my experience that Our Lord above has directed our path at times to trans-sect with someone who could provide an answer or some type of support that made all the difference for us. I pray for you to have some of these kind of moments, to lift the burden you have to shoulder, to move toward a future where you can find peace again as a family together. To that end and not to offer info you may already have, have you been in touch with:The Florida Developmental Disabilities Council www.fddc.org 1-800-580-7801. Also try the Olmstead Rights.org site and click on your state for connection to a state resource and advocacy listing.Nationally, there is the Pass It On Center in Georgia 404-894-0541. You may also want to look at Rehab Equipment Exchange.com since they have a link to a group there in Florida. Another program in Georgia is www.gtradeonline.org. If you want to look into a good assistive tech resource try Crotched mountain.org as well since they do have some refurbished medical equipment items too. I would value them for their knowledge base on assistive tech tools which I believe you need for Mandy drastically. The special fish oil is a bit difficult to offer any suggestions since I do not know enough regarding company and type to offer ideas. That said, many drug companies will look at special needs cases and try to find a method where by they can help, like maybe a voucher to off set the total cost. Maybe that could help. I will continue to pray and if you need to or want to communicate, you could message me through my facebook home.

+ Read More
Debbie Carson
13 months ago
1
1

Mr. Baker, we have chatted once or twice, however, this time I wanted you know that I have shared you story with Tripp Halstead Updates. His mom has a share Sunday post she does each week. It is a place to post stories about families and children with special needs. I posted this with the hope that it will help you get your story get out to a wider audience. If you don't feel like it is an appropriate venue to share on, let me know, I will delete it.

+ Read More
Carolyn Myers Wall
23 months ago
1
1

My daughter, Becky Blevins, has told me about your sweet family...I wanted you to know that I hold your daughter in my prayers....hopefully, Gods plan is for a complete recovery but, if it is not, I pray for even the smallest amount of recovery and peace to go along with it...Carolyn Wall

+ Read More
Candy O'Donnell
29 months ago
1
1

My heart goes out to you all. God bless

+ Read More
Debbie Fisher
40 months ago
1
1

Your story touches our hearts, and as I pray for our daughter, Grace every night, I will pray for you and your family. Her story is at posthope.org/gracefisher . Grace also has a sister, Emily and as I pray for Emily, I will remember to pray for Amanda's sister too.

+ Read More
Sherri Harrod
45 months ago
1
1

My son had something similar happen a few years ago just after receiving the flu vaccine. His first symptoms were neck and shoulder pain I though he slept wrong on his neck. Long story short we ended up in the hospital because he began to go paralyzed in his upper body. No one knew what was wrong with him. We were lucky to have Dr. Steven Winesett who figured out that he had Parsonage Turners Syndrome. It was from the Flu vaccine. His body reversed the effects on it's own and he continues to heal from the effects. I will keep your family in my prayers. Dr. Winesett is with all Childrens Hospital and a pediatric Neurologist. I recommend giving him a call maybe he can help?

+ Read More
Paula Myers
1 month ago

Praying for your daughter and your family Jeff Baker!!

+ Read More
Kyesha Rogers
41 months ago

To the Baker family my heart goes out to you all and just know that God is a healer and as you all talk with your daughter speak healing over her body and god will do it I love yall and keep ya mind on God

+ Read More
Heidi Mauter-Hale
43 months ago

Many, many prayers for Mandy and the Baker family.

+ Read More
Lisa Coffey
43 months ago

Just saw the comment below from our cousin, Jamie...wow. Still circulating this link, and always keeping you in thoughts and prayers...Love you...see you soon...

+ Read More
Jeffrey Baker
43 months ago

We are most likely looking at sending Mandy to a rehab center in Jacksonville, FL since we were denied at Shepherds in Atlanta. We will have to come up with about $3000 in transport fees and further time with Karen out of work. Any help is extremely appreciated. Thank you again for all of the support and prayers. God Bless You.

+ Read More
Lisa Sigmon
44 months ago

I only met her once at a funeral and I really enjoyed meeting her. She was so friendly to me. I’m praying Karen.

+ Read More
Jeffrey Baker
45 months ago

Janice, we asked several times and I believe that they did check for lyme. We will be meeting with docs again this week and I will double check but I know that no tick was ever found on her. Chris Turner, could you possibly send me a message via facebook if you have any other details on the coworker or have their family contact me via facebook? Thank you to everyone for the donations and continued prayers. God Bless You!

+ Read More
Chris Turner
45 months ago

I have a co worker that was just diagnosed with this same disease up north. He has good and bad days. Several times they thought they were going to loose him. He still is unable to talk. Is paralyzed from the neck down. I am sending prayers every day for all of these families that are dealing with this awful disease....

+ Read More
Janice Morgan
45 months ago

Please have them run a test for Lyme Disease! You may just be surprised. a lot of docs. don't like to do this because Lyme is a man made illness.. long story!my daughter has this! god bless

+ Read More
Nancy Foster
45 months ago

For anyone who doesn't believe this, please read the article about my niece Mandy in the Lakeland Ledger: http://www.theledger.com/article/20140912/NEWS/140919757 Keep Mandy and her family in your heart and prayers.

+ Read More
Jeffrey Baker
45 months ago

Hello Jamie. Thank you so much for the prayers. Please give my love to Bonnie. I haven't seen her in such a long time.

+ Read More
Justin Dowdy
45 months ago

Jeff & Family, my name is Jamie and my mother, your cousin Bonnie, asked me to send her sympathy, prayers and most of all love. It's terrifying how quickly a life destined for greatness can be sidelined in a matter of minutes, but this is only a small bump on Amanda's path to a full, successful and happy life. They happen and the most important tool in getting through them unscathed is the undying love of a family, and that's something Amanda has in abundance. Growing up I've heard countless stories of Bonnie's time in Florida and her experiences with all of her cousins, and, with 100% honesty, I can say they were all tales of joy that she fondly looks back on. Everyone here in Virginia (your cousins Dale, David, Lisa, Dennis, Neil and Darla, your Aunt Shirley and Uncle Fred (Buddy) just to name some off the top of my head) is thinking about you guys and hoping everyone comes out of this as unscathed as possible. Love to you all, - Bonnie & Jamie

+ Read More
Lisa Thompson
45 months ago

will be praying for you honey God bless you

+ Read More
Jeffrey Baker
45 months ago

I continue to be humbled and amazed at the generosity of such great friends and family. I can't thank you enough for the continued donations and support. This could not come at a better time as this pay period will be my wife's first without any pay. Thank you and God bless you.

+ Read More
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