Blessings for the Baker Family
Through all of this Amanda’s parents, Karen and Jeff, have been by her side, day and night. This of course means that they are not working and vacation and sick days have been drained. Complicating matters further, Amanda's father has been dealing with a recent failed spinal fusion surgery resulting in loss of income for nearly a year and the multiple surgeries required to resolve his spinal condition have been put on hold. Jeff has also been forced to exhaust his retirement funds by early withdrawal. I am establishing this fund for the Baker family in an effort to help alleviate some of the financial stress this situation is causing.
Although Karen and Jeff are currently living every parent’s nightmare not knowing exactly what is wrong with their child, how it will be treated and what the prognosis will be, Amanda’s younger sister Elizabeth struggles as well. Elizabeth is dealing with all honors classes in her first year of middle school while traveling to the hospital in Tampa after school in order to keep contact with her mentor and big sister.
Amanda, an honors student and accomplished musician aspiring to forge a career in biochemistry, was due to start her sophomore year of high school just a week after this cardiac event. Prior to this medical mystery, Mandy's biggest obstacle for the year would have been learning the new musical arrangements of marching band, managing her time between playing guitar, saxophone, oboe, or flute and ultimately passing her drivers exam, but now this amazing young lady finds herself fighting for her life.
I thank you for taking the time to read this, for your prayers for this sweet family and for considering a donation.
I know your family has been through so much. You deserve all the assistance anyone can offer.Beyond prayers for some how a miracle that could restore your family, I can share I've faced life altering adversity within my own family. There have been moments of unexpected blessings and ones of heartbreak. It has been my experience that Our Lord above has directed our path at times to trans-sect with someone who could provide an answer or some type of support that made all the difference for us. I pray for you to have some of these kind of moments, to lift the burden you have to shoulder, to move toward a future where you can find peace again as a family together. To that end and not to offer info you may already have, have you been in touch with:The Florida Developmental Disabilities Council www.fddc.org 1-800-580-7801. Also try the Olmstead Rights.org site and click on your state for connection to a state resource and advocacy listing.Nationally, there is the Pass It On Center in Georgia 404-894-0541. You may also want to look at Rehab Equipment Exchange.com since they have a link to a group there in Florida. Another program in Georgia is www.gtradeonline.org. If you want to look into a good assistive tech resource try Crotched mountain.org as well since they do have some refurbished medical equipment items too. I would value them for their knowledge base on assistive tech tools which I believe you need for Mandy drastically. The special fish oil is a bit difficult to offer any suggestions since I do not know enough regarding company and type to offer ideas. That said, many drug companies will look at special needs cases and try to find a method where by they can help, like maybe a voucher to off set the total cost. Maybe that could help. I will continue to pray and if you need to or want to communicate, you could message me through my facebook home.
Your story touches our hearts, and as I pray for our daughter, Grace every night, I will pray for you and your family. Her story is at posthope.org/gracefisher . Grace also has a sister, Emily and as I pray for Emily, I will remember to pray for Amanda's sister too.
My son had something similar happen a few years ago just after receiving the flu vaccine. His first symptoms were neck and shoulder pain I though he slept wrong on his neck. Long story short we ended up in the hospital because he began to go paralyzed in his upper body. No one knew what was wrong with him. We were lucky to have Dr. Steven Winesett who figured out that he had Parsonage Turners Syndrome. It was from the Flu vaccine. His body reversed the effects on it's own and he continues to heal from the effects. I will keep your family in my prayers. Dr. Winesett is with all Childrens Hospital and a pediatric Neurologist. I recommend giving him a call maybe he can help?
Mr. Baker, we have chatted once or twice, however, this time I wanted you know that I have shared you story with Tripp Halstead Updates. His mom has a share Sunday post she does each week. It is a place to post stories about families and children with special needs. I posted this with the hope that it will help you get your story get out to a wider audience. If you don't feel like it is an appropriate venue to share on, let me know, I will delete it.
My daughter, Becky Blevins, has told me about your sweet family...I wanted you to know that I hold your daughter in my prayers....hopefully, Gods plan is for a complete recovery but, if it is not, I pray for even the smallest amount of recovery and peace to go along with it...Carolyn Wall
To the Baker family my heart goes out to you all and just know that God is a healer and as you all talk with your daughter speak healing over her body and god will do it I love yall and keep ya mind on God
Many, many prayers for Mandy and the Baker family.
Just saw the comment below from our cousin, Jamie...wow. Still circulating this link, and always keeping you in thoughts and prayers...Love you...see you soon...
We are most likely looking at sending Mandy to a rehab center in Jacksonville, FL since we were denied at Shepherds in Atlanta. We will have to come up with about $3000 in transport fees and further time with Karen out of work. Any help is extremely appreciated. Thank you again for all of the support and prayers. God Bless You.
I only met her once at a funeral and I really enjoyed meeting her. She was so friendly to me. I’m praying Karen.
Janice, we asked several times and I believe that they did check for lyme. We will be meeting with docs again this week and I will double check but I know that no tick was ever found on her. Chris Turner, could you possibly send me a message via facebook if you have any other details on the coworker or have their family contact me via facebook? Thank you to everyone for the donations and continued prayers. God Bless You!
I have a co worker that was just diagnosed with this same disease up north. He has good and bad days. Several times they thought they were going to loose him. He still is unable to talk. Is paralyzed from the neck down. I am sending prayers every day for all of these families that are dealing with this awful disease....
Please have them run a test for Lyme Disease! You may just be surprised. a lot of docs. don't like to do this because Lyme is a man made illness.. long story!my daughter has this! god bless
For anyone who doesn't believe this, please read the article about my niece Mandy in the Lakeland Ledger: http://www.theledger.com/article/20140912/NEWS/140919757 Keep Mandy and her family in your heart and prayers.
Hello Jamie. Thank you so much for the prayers. Please give my love to Bonnie. I haven't seen her in such a long time.
Jeff & Family, my name is Jamie and my mother, your cousin Bonnie, asked me to send her sympathy, prayers and most of all love. It's terrifying how quickly a life destined for greatness can be sidelined in a matter of minutes, but this is only a small bump on Amanda's path to a full, successful and happy life. They happen and the most important tool in getting through them unscathed is the undying love of a family, and that's something Amanda has in abundance. Growing up I've heard countless stories of Bonnie's time in Florida and her experiences with all of her cousins, and, with 100% honesty, I can say they were all tales of joy that she fondly looks back on. Everyone here in Virginia (your cousins Dale, David, Lisa, Dennis, Neil and Darla, your Aunt Shirley and Uncle Fred (Buddy) just to name some off the top of my head) is thinking about you guys and hoping everyone comes out of this as unscathed as possible. Love to you all, - Bonnie & Jamie
will be praying for you honey God bless you
I continue to be humbled and amazed at the generosity of such great friends and family. I can't thank you enough for the continued donations and support. This could not come at a better time as this pay period will be my wife's first without any pay. Thank you and God bless you.
Please message me privately. My children and I also want to send her cards and a letter of encouragement. I need an address. I am a mom of five. Strange as it may seem my connection with this story came as I just decided an hour ago to complete my college degree in Biochemistry. I will pray for you MUCH Amanda and you keep your heart and eyes looking up and one day we will both hold our Biochemistry degrees!