D-Fense for Dylan Provenzano

$6,230 of $10,000 goal

Raised by 92 people in 31 months
Jenny Pisarek Nowaczyk
on behalf of Sam Provenzano
 ELGIN, IL
Dylan Provenzano is an active 12 year old that never stops smiling. Dylan and his sisters became my nieces and nephew several years back when I became great friends with their parents. Dylan has had to face several difficulties growing up. He was diagnosed at a young age with Autism. That did not stop him. He has found his passion playing baseball. This cutie kicks butt on the field. He goes hard and strong every time. It's with a heavy heart that Dylan was diagnosed with a malignant tumor on his left fibula. It is 12cm long and the width of a cutie orange.  Dylan has had several other tests since the tumor has been removed. We now play the waiting game. 

Dylan's Mom Samantha Provenzano has become one of my sisters.  Sam has always gone above and beyond for others in need. Always having fundraiser to raise money for different causes. Not a moment goes by that she is not thinking or doing something for someone else! Now the time to give back to them! I don't want them to have to worry about anything during this time. So I ask all of my friends if you could spare a little and even forward this on it would greatly be appreciated.
+ Read More
It has been a while since we updated.

It has been a long month but a great summer.

End of June we had a relapse scare. Which ended up having Dylan receive a 5hr MRI under GA and the longest most stressful day of our lives. The next day we had his clinic appointment and were told that he was...
10months NED!

However they did find that there are some long term effects that he has -- such as chronic pain and early onset arthritis. So name of the game is... pain management, rehab, physical therapy, sport medicine doctors, rheumatologist and oncologist every 3months, cryotherapy and looking for alternative therapy for his PTSD (looking for someone who can do alternative progressive therapy not sitting down and talking or drawing.. but willing to get him outside and doing things and talking thru them) BUT... one good thing is.... we met with his orthopedic surgeon out of Comers Children's Hospital... and he said we no longer need to come every 9weeks for a follow up... he is so pleased with the way Dylan is healing from surgery that he only needs to come on an as need basis!!!

He has also put Dylan's story and healing process from a surgery standpoint in the books for Doctors and Researchers to call us... he is amazed at all that Dylan has and continues to do 1year post surgery!

Dylan this summer... has HIT his 1st home run in a game since diagnosis... he has won a tournament with his baseball team... he has helped raise 10,000 for the Anthony Rizzo Family Foundation with a celebration Home Run Derby we hosted, he got his 1st hair cut post chemo.. GOODBYE BLONDE.. HELLO STUD

He continues to strive thru the pain and just be a KID..

It is hard to believe but so exciting in 1 month he will be entering 8th grade and in 2months we will be celebrating his 1yr out of treatment and his 14th birthday!!

Thank you all for your continued support and well wishes! Please don't ever stop sending all of the positive vibes and juju out in the universe!
+ Read More
Hi this is Dylan's mom... we wanted to send a great big thank you to everyone who has supported Dylan thru this whirlwind of a year.

We also wanted to reach out and update everyone.

Dylan is doing so well right now. He finished his last chemo of this frontline at the end of September and was considered NED (no evidence of disease) on 10.5.17

He has enjoyed every second of getting back to "normal" life... he is struggling from some long term side effects of the chemo and surgery but trying to do whatever he can to beat the odds. He will have a long road ahead of him for the next 5 years (every 3 months he is set to have a series of tests and scans to make sure that this pesky little Ewings Sarcoma stays FAR AWAY)

He has begun pitching lessons again and will be starting a baseball camp in January, he also completed a 5K at the beginning of December... if he can do that 2months after a year of intense chemo I know he can and will continue to move mountains.

Dylan is set to have another set of scans on the 29th of December which has us all on edge as it seems SCANXIETY is the most traumatic thing a parent and patient can have... We are crossing fingers that all is good and he will be NED again and then he can have surgery in January to remove his port. Next steps are to continue PT at home (as he has tapped out of PT for insurance and fulfilled his prescription) We do realize how vital it was for him to keep it up during the entire treatment and we will keep him doing it. He wants to try out for a baseball team this winter so he can play in spring but we are playing that by ear.

His hair is growing back and for those of you who know, the SWOOP is back... a little blonder and softer but it is there and he could not be happier.

So keep those fingers crossed and send all the good healing vibes that all goes well next week!

Happy EVERYTHING
+ Read More
Dylan is set to finished his last round of Chemo on Sept 9th. This young man has been a beast through it all. Let's celebrate with a donation to Dylan and his family. Love you little man..
+ Read More
Read a Previous Update
Be the first to leave a comment on this campaign.

$6,230 of $10,000 goal

Raised by 92 people in 31 months
Created January 15, 2017
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
PB
$35
Paige Bengtsen
11 months ago
$50
Anonymous
12 months ago
DW
$40
Danielle Weiss
12 months ago
JB
$50
Jennie Burke
13 months ago
$100
Mason Pritchett
13 months ago
AI
$25
Andrea Idso
14 months ago
1
1
CP
$100
Cari Paterno
20 months ago
1
1

Merry Christmas! Given to you in the name of Martin and Cheryl Mercy, my folks, who are both Big C survivors. Keep fighting always.

$100
Anonymous
20 months ago
1
1
MM
$25
Macy Monical
22 months ago
1
1

Macy and her friend Michaelene are classmates of Dylan. They had a couple of lemonade stands over the summer to raise this money for him. Glad to hear he's coming back to school next week!

BO
$50
Becky Ornelas
22 months ago
1
1
Be the first to leave a comment on this campaign.
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.