Support the Delaney Twins
The girls have now been separated and are home and thriving better than we could have imagined!! We are so grateful to those who have helped our family navigate the financial aspects of this journey, but it is still not over. We finally were able to move out of my parents place and get our own but rent is not cheap by any means and we are still down an income since I have to stay home with the girls. And we have random other expenses that we weren't expecting like some of the girls meds are being charged for the way they are prepared which comes out to about $200 a month.
We also have to make many trips back and forth to philly. We will be headed up there for about a week the beginning of February and then for a month somewhere between march and April. Each of these times we are not guaranteed a room at the Ronald McDonald house since there is always a waiting list so we need to be prepared to afford hotels and food as well as other expenses that come with making a 12 hour trip with two medically complex 18 month olds. Anything helps and we would be so grateful!
God has truly blessed our family through the kindness of others and we can't wait for the day when we can help another family struggling the way that we are now.
My Husband and I found out we were expecting on Janurary 11th 2016. We were ecstatic to say the least. We then at our first ultrasound found out that we were expecting twins, but that our twins were very special, and very rare. We are expecting conjoined twins. There are a few different types of conjoined twins, and ours are considered Craniopagus twins, which means they are conjoined at the head. They are only found once or twice in every 2.5 million live births and only represent 2%-6% of all conjoined twins. We have decided to do everything we can to give our twins a fighting chance at life and we already love them more than we could ever imagine.
Any and all support is such a blessing and are so grateful to those who have already donated. We have some medical insurance but are not sure if they will cover any out of state procedures, which will account for a lot of my care including their birth. We also will be having to travel several times and that is never cheap. I also ended up quitting my nanny job because of so many unknowns with this pregnancy including all of the extra doctor appointments. So we are down to only one income which difficult
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We have finally moved into our own place! It's been my dream since the day I found out I was pregnant to decorate the girls nursery and I am now getting that chance! And let me tell you the tears have come many times while I'm doing so. I still can't believe we have made it through some of the toughest parts of this journey. But being home is not any less scary than being in the hospital when you have children who have "special needs". We've already had one ambulance ride that resulted in a head Ct that thankfully found nothing wrong but it is still incredibly scary none the less. Being the one person who is the most knowledgeable in the house means when things get scary you're the one everyone looks too. And you become responsible for saving your child's life if it comes down to it.
But despite that one even the girls have been doing very well! They're working on all the skills from eating to rolling to sitting up and standing. They grow stronger each and every day and are so so so happy!!!
We head back up to philly the beginning of February for some follow up visits and then the girls will have another surgery sometime in March/April and we will hopefully set those dates soon.
Keep us in your prayers as we venture back into the hospital side of things. We are just getting used to being home and I don't know if I'm ready to face them having surgery again. But God gives us the strength to do the things we must. We are still navigating our finances trying to get out of the hole we ended up in and we are so grateful to those who are helping us and have sent the girls gifts through our Amazon registry. Please pray that as we travel back to Philly that the Ronald McDonald house will have a room available for us because we aren't sure how we'd afford a hotel. God always provides and we know he will this time again.
Thank you all for your continued prayers and support! We couldn't be more grateful!!!
I will blog as soon as I figure out a way to :)
The girls are doing well since being separated. Both have been in rehab for about a month now and are progressing more and more each day. We have tough times but we get through and we are bound to have more. But with God all things are possible and He has such a special plan for these girls and we love watching that plan unfold.
Happy the girls are doing ok....if I were there would give you all a hug....I am so happy we have a loving God who cares for all of mankind....please take time to read one of my favorite scriptures at Revelation chapter 21 and verses 3 and 4... This gives us such a wonderful hope.....
Such good progress! Glad that you haave the use of a new computer to think it all through and keep us updated. I hope that you will work up your emotions to try the library story hour again soon, perhaps with another lady you know from the town going with you (though I know you may have had limited time to meet someone just right yet.) I am sure that at least one of those ladies was very close to coming over to talk and held back. She might be kicking herself now. Prayers for you all...