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Deane vs ALS

$70,176 of $100,000 goal

Raised by 388 people in 5 months
Created February 3, 2019
Deane was diagnosed with ALS on 24 December 2018. A 29 year old Combat Engineer veteran of Afghanistan, Deane has served nearly 12 years in the Canadian Armed Forces and continues to do so. It comes as a huge shock that somebody so young and healthy could be diagnosed with this illness. Deane is exceptionally young to have been diagnosed with ALS, a disease which typically presents itself in someone's late 50’s or early 60’s. 

Since the diagnosis, Deane and his family have sought advice from the Chief Neurologist of the Massachusetts General Hospital, which is recognized as a centre of excellence within North America; following this guidance, Deane has decided to pursue the latest developments in medical technology to combat the disease progression. Unfortunately, due to the experimental nature of the treatment, funding through the Canadian Health Care system is unavailable. The donations from this campaign would be used to assist Deane in paying for the expensive treatments. Clinical research that justifies this pursuit may be found here:  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6175096/

Without this treatment the average life expectancy of those diagnosed with ALS is 2-5 years.


**For those of you who want to reach out to Deane, I would ask that you please do so through myself, Erik. You can message me directly from this campaign. I will be meeting with Deane frequently to pass along all of your messages of support! Thank you everyone for the huge rally!**
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As everyone can see we are accepting donations again and sincerely appreciate all of your support thus far including sharing this campaign with others.

After Deane's referral from Massachusetts General Hospital to the Hanyang University Medical Center, Deane completed the first bone marrow extraction on 04 Apr, received the first dose of stem cells on 02 May and will have the final stem cell injection on 28 May.

At this time it is too early to determine if the treatment has effectively slowed down disease progression. Over the next four months, if it is determined that Deane has responded positively to the treatment, he will be allowed to return and begin this process again in six to twelve months time.

Attached are the invoices from the Hanyang University Medical Center and the affidavit of treatment.

Again, thank you for your generosity and support.

Erik
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I would like to give a huge thank you to all those who helped this campaign succeed through sharing Deane's story, donating, and letting Deane and his family know that we are all here to help in any way we can. It is unbelievable that we were able to raise over $56,000 in 3 days! I dont know what else to say other than your generosity has blown Deane, his family, and myself away. Thank you.

Since the $50,000 goal has been reached, we have decided to stop accepting additional donations for the time being. Feel free to contact me for any updates on Deane or this campaign!

Erik
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Thank you all for the immediate support right out of the gate!

Deane has asked to have minimal administrative involvement in this campaign, so to be clear I will be handling the donations on Deane's behalf. I will only be withdrawing your donations and transferring it to Deane when he has expenses that need to be covered.

Thanks again everyone!

- Erik
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$70,176 of $100,000 goal

Raised by 388 people in 5 months
Created February 3, 2019
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