Daphne Reynolds Kick "C"' Fund

Urgent Daphne Reynolds Update: 10/25/16 7:55pm

Chemo didn't happen today, because of a comedy of errors or God's will, you decide. We are having a Brain Biopsy tomorrow though, so read this, and pray for us.

Daphne had a tough night last night as she was riddled with back pain due to coughing and stress. We had spoken with the Neurosurgeon yesterday and signed consent forms so they could schedule a brain biopsy a few weeks from now. That stressed her out, as did the thought of chemo starting today, so it was amazing that she slept like a champ last night. She felt like crap, which may have knocked her out, but she fell asleep backwards on the bed and slept through most of the people checking her out all night until about 6:30 in the morning.

Or maybe the good sleep was because she had a Frito pie before dinner thanks to one of the awesome nurses here.

While she was napping, Peyton Rae and I went down to the cafeteria to get pudding and ice cream. While walking out we saw a room that was empty, AND HUGE, and went in for a look. It was formerly a double room and featured a full living area with pull out couch, multiple chairs, and two tvs. I was in love. So I started asking any nurse that would listen if we could get moved to it last night before going to bed.

After an impromptu doctor's visit, we decided it was time for some food, and since we had missed ordering breakfast she was going to be getting hungry soon. I went down to pick up food and while gone Daphne called to say that they were moving us to a bigger room. I was hoping that the bigger room would mean 9301, the magic room I had checked out, but I had no clue.

When I returned the room we had been in was empty and so I asked a nurse. She confirmed that we were in fact in room 9301!!! Woot woot! I could not have been more excited. Truly. It was awesome! It is awesome!

So after a good breakfast, it was time to sit around and wait for chemo to start. We waited, and waited, and waited some more, until mid afternoon when I got pissy and started asking WTF was going on. We got some story that we didn't understand and were assured that we would see our oncology fellow shortly. When Dr. Li came to see us we asked what had happened and she informed us that there was some issue with ordering the chemo regiment from the pharmacy. We went over what we should expect, when it would start tomorrow, and got some other questions about the schedule and duration answered.

So when an anesthesiologist comes in and says that we are good to go for a surgery at 7:15 in the morning we think she must be mistaken. It turns out she's not. But we don't know that until we get pissed and start telling everyone to get their heads out of their asses.

The problem comes from the fact that we have three medical teams working on Daphne. The Thoracic Medicine group is the one taking care of us on a daily basis after the Thoracic Surgery group got done with us a couple days ago. The Oncology Group are the ones taking care of killing the cancer via Chemo and Radiation. The Neurosurgery group is going into Daphne's brain to do a biopsy on a lesion that they don't believe is cancer but are wanting to check out anyway.

All of this is good, except for the fact that the right hand didn't know what the left hand was doing. So after have a come to Jesus meeting with Thoracic Medicine, and getting their assurance that they would coordinate all three groups actions, we sat down to wait for more information.

That information came in batches, but ultimately here is what is happening tomorrow.

Daphne is getting brain surgery!!! Well the biopsy anyway. And then we are going to recover from that for a few days and then go home for a few days and then we'll be coming back here to start chemo in a week or so. Talk about a rollercoaster.

Daphne is scared. I don't blame her. But I'm also confident in the Neurosurgery team and their skills. I have faith that everything will be fine. She has a lesion, or tumor, or something, that is 1 cm in diameter and located in her right frontal lobe. It's shallow, so it is easy to reach, and they will go in and grab some cells off of it so that they can send them to pathology and see if they are cancerous. If not, they will tell them what it is and then they will likely remove whatever it is. If it is cancerous they will do the same thing, but will also use the Gamma Knife radiation to kill any cancer cells around the edge.

Daphne's cancer is insanely rare. Like 438 or so adults to every be diagnosed with it. But it has never been known to metastasize in the brain. So that would make her a unicorn. She's already insanely rare because of the cancer itself, and then the fact that she is 49 years old makes it rarer yet.

Here's to hoping that this will be something simple and non threatening and that they clean it up and she's good to go. We are confident that she is going to be fine. But we want to ask all of you to send your prayers, your well wishes, your thoughts, and your love so that Daphne will come out of this okay. She's nervous, she's scared, she's worried about leaving her babies.

I want to thank all of you who have already been praying, already donated, and who have sent your well wishes. It is appreciated more than you know.

And we certainly want to thank all of you for donating to the GoFundMe page that MJ setup for us. We are surely going to need it before this is all over, and can't thank you enough for helping take care of us. I can't thank you enough for helping take care of my wife.

We love you all.

Chad