Daphne Reynolds Kick "C"' Fund
Chemo didn't happen today, because of a comedy of errors or God's will, you decide. We are having a Brain Biopsy tomorrow though, so read this, and pray for us.
Daphne had a tough night last night as she was riddled with back pain due to coughing and stress. We had spoken with the Neurosurgeon yesterday and signed consent forms so they could schedule a brain biopsy a few weeks from now. That stressed her out, as did the thought of chemo starting today, so it was amazing that she slept like a champ last night. She felt like crap, which may have knocked her out, but she fell asleep backwards on the bed and slept through most of the people checking her out all night until about 6:30 in the morning.
Or maybe the good sleep was because she had a Frito pie before dinner thanks to one of the awesome nurses here.
While she was napping, Peyton Rae and I went down to the cafeteria to get pudding and ice cream. While walking out we saw a room that was empty, AND HUGE, and went in for a look. It was formerly a double room and featured a full living area with pull out couch, multiple chairs, and two tvs. I was in love. So I started asking any nurse that would listen if we could get moved to it last night before going to bed.
After an impromptu doctor's visit, we decided it was time for some food, and since we had missed ordering breakfast she was going to be getting hungry soon. I went down to pick up food and while gone Daphne called to say that they were moving us to a bigger room. I was hoping that the bigger room would mean 9301, the magic room I had checked out, but I had no clue.
When I returned the room we had been in was empty and so I asked a nurse. She confirmed that we were in fact in room 9301!!! Woot woot! I could not have been more excited. Truly. It was awesome! It is awesome!
So after a good breakfast, it was time to sit around and wait for chemo to start. We waited, and waited, and waited some more, until mid afternoon when I got pissy and started asking WTF was going on. We got some story that we didn't understand and were assured that we would see our oncology fellow shortly. When Dr. Li came to see us we asked what had happened and she informed us that there was some issue with ordering the chemo regiment from the pharmacy. We went over what we should expect, when it would start tomorrow, and got some other questions about the schedule and duration answered.
So when an anesthesiologist comes in and says that we are good to go for a surgery at 7:15 in the morning we think she must be mistaken. It turns out she's not. But we don't know that until we get pissed and start telling everyone to get their heads out of their asses.
The problem comes from the fact that we have three medical teams working on Daphne. The Thoracic Medicine group is the one taking care of us on a daily basis after the Thoracic Surgery group got done with us a couple days ago. The Oncology Group are the ones taking care of killing the cancer via Chemo and Radiation. The Neurosurgery group is going into Daphne's brain to do a biopsy on a lesion that they don't believe is cancer but are wanting to check out anyway.
All of this is good, except for the fact that the right hand didn't know what the left hand was doing. So after have a come to Jesus meeting with Thoracic Medicine, and getting their assurance that they would coordinate all three groups actions, we sat down to wait for more information.
That information came in batches, but ultimately here is what is happening tomorrow.
Daphne is getting brain surgery!!! Well the biopsy anyway. And then we are going to recover from that for a few days and then go home for a few days and then we'll be coming back here to start chemo in a week or so. Talk about a rollercoaster.
Daphne is scared. I don't blame her. But I'm also confident in the Neurosurgery team and their skills. I have faith that everything will be fine. She has a lesion, or tumor, or something, that is 1 cm in diameter and located in her right frontal lobe. It's shallow, so it is easy to reach, and they will go in and grab some cells off of it so that they can send them to pathology and see if they are cancerous. If not, they will tell them what it is and then they will likely remove whatever it is. If it is cancerous they will do the same thing, but will also use the Gamma Knife radiation to kill any cancer cells around the edge.
Daphne's cancer is insanely rare. Like 438 or so adults to every be diagnosed with it. But it has never been known to metastasize in the brain. So that would make her a unicorn. She's already insanely rare because of the cancer itself, and then the fact that she is 49 years old makes it rarer yet.
Here's to hoping that this will be something simple and non threatening and that they clean it up and she's good to go. We are confident that she is going to be fine. But we want to ask all of you to send your prayers, your well wishes, your thoughts, and your love so that Daphne will come out of this okay. She's nervous, she's scared, she's worried about leaving her babies.
I want to thank all of you who have already been praying, already donated, and who have sent your well wishes. It is appreciated more than you know.
And we certainly want to thank all of you for donating to the GoFundMe page that MJ setup for us. We are surely going to need it before this is all over, and can't thank you enough for helping take care of us. I can't thank you enough for helping take care of my wife.
We love you all.
Chad Reynolds with Cole Reynolds and 2 others at Keck Medicine of USC (Keck Medical Center of USC).
1 hr · Los Angeles, CA ·
Daphne Reynolds Update: 10/22/2016 9:22 AM
Yesterday was a big day for Daphne, getting her breathing tube out and becoming human again. She's got a perfectly normal airway now, so she can breath, eat, etc like a normal person. In theory anyway. You see poor Daphne has been so crippled with cough and breathing issues that escalated over the past 7 weeks that, while she was beyond ecstatic to have the breathing tube removed, she was scared of what might happen if she coughed too much. That meant that trying to eat and drink last night was not very successful. Either was her prescribed breathing treatment, since all her previous breathing treatments were do get giant chunks of stuff out of her throat and lungs. This is not the case any longer.
So it is with great optimism that I write this update this morning, as she has gotten new motivation and encouragement this morning. When Doctor Hagen came in this morning and asked how she was I told him that she was a bit intimidated by the breathing treatment. He said she would be getting moved to a standard room some time today and that her airway and such were all normal so she had nothing to worry about. He also said that she would not be on telemetry, meaning her Racepak wouldn't be hooked up anymore to monitor pressures, temps, and flow. This is important because he also told her that without the Racepak connected she can move around the room easier. And the floor of the hospital easier. And outside. Outside means we can have Peyton Rae bring the dogs to visit. Outside means Daphne can feel like a human again. It's been more than one week since she saw the outside air, other than getting taken out of one ambulance and rolled to a hospital back entrance. This could be big.
So, with Hagen's support that she is fine, she is sitting here now eating a bran muffin soaked in hot tea. Today's focus is going to be eating. She's going to work on it throughout the day slow and steady so that we can be working our way towards eating normally. She is on no diet restrictions, so it is all going to be up to her and her tummy.
Seeing the dogs will be a great motivator. Because Daphne had been on a ventilator for two days, and had an incredibly rough day before that, and then wasn't ready to look at social media yesterday, today will be the first day she is looking at all these messages. She started looking at a few already this morning and has been crying over all the support all of you have been sending. I'm sure she will cry some more today as she works her way through the last several days worth of messages. I can't tell you how much it means to both of us.
Every one of you is key to her strength and success. Today though I want to give a special shout out to a class act, Brian Macy, who has been fighting his ass of for a second chance at life and he's kicking cancers ass one day at a time. He's getting better, but not without an insane battle. And he's still deep in the fight. But while still throwing punches at cancer's jaw, he sent advice on chemo and encouragement for Daphne. That's above and beyond. And we appreciate it.
He's not alone, and we have had so many people reaching out who have found themselves in similar situations at one point or another. And then there are the folks like Jeff Odell who reached out to us on the day his wife Ginger died and offered advice, help, and more. He's burying Ginger today and our thoughts and prayers go out to him. God speed Ginger.
So celebrate Ginger's life today, and yours as well. We're going to celebrate ours and work on getting Daphne as strong as possible so she is prepared for the adventures of chemo next week.
My last expression of gratitude is going to a guy who all of you would know, but who's name I'm not going to put out there at this point. When he heard about Daphne's plight a few days ago he called and left me a message saying that he wanted to know if there was anything we needed. Knowing we live an hour away from USC, with no traffic, 2.5 hours with traffic, he offered his rock star motorhome to us if we needed a good place to stay. I can't believe the generosity that has come from each and every one of you out there, and how much the racer community has stepped up, whether pro or sportsman.
We love you all, and we'll have more coming later today as we're getting moved and stuff.
Daphne Reynolds Update: 10/21/2016 8:30 am
Our little patient was done being patient this morning and wanted the breathing tube out! She had to wait a bit longer than she wanted, but it has been out for an hour or so and she's doing great. Feeling a lot better with it out, breathing fine, and just had a bunch more tubes pulled out of her.
Now she's getting out of bed!
We'll be staying here another night probably and then going home for a day or two probably. Then it's back Tuesday for a port for chemo therapy administration and we start kicking this things ass!
This has been our first big step forward, and with a couple days to get her strength back up, we can start chemo on the right foot. Because of the type of sarcoma we have, the treatment will be different than we originally thought, so the treatment schedule is kind of complicated. Or so we are told. We'll know soon, and know that our team here at Keck Hospital at USC, and the USC Norris Cancer Center, will take good care of us.
We can't thank everyone for sending prayers and well wished enough. And all the amazing folks that have given to the GoFundMe page!? Are you kidding me? It is so touching. Daphne doesn't even know what has happened in the last couple days since she's been on the ventilator. So when she sees all the comments, prayers, well wishes, and donations she's going to flip.
Thank you all. We will continue to fight as hard as we can and make you all proud. I can't seem to stop tearing up when someone else says something nice or when we read some other message. And when my little wife does something super bad ass and surprises the shit out of the doctors, it makes me proud. I think she's getting tired of me telling her how awesome she is, but she'll get over it.
We love you all. Thank you. More reports to come!
Thanks for taking the time to update us! Hang in there, there are a whole lot of us rooting and praying for Daphne's recovery. (All the way from the great white north!) Keep on top of those medical teams.....you are her eyes and ears! Glad you are there ever step of the way. Stay strong! ❤️
Thank You for the updates & I'm sending prayers ... Stand strong as you are & keep up the good work !! God Bless you all ... The Caresio's /Wright's;; Young Gun Racing Team Aka, Adam Wright
They said my wife had triple negative breast cancer, oncologists said it was the hardest to treat, limited choices on drugs, ended up being enough. I think their choices made them more thorough, sounds like the same case you are in. Ask them to prescribe the omeprozole,(like pepcid) to see if it gets covered, it will help.
I am so sorry to hear this! I am unable to donate myself because I have stage 3 bladder cancer! I can send thoughts and prayer ur way and hope for a speedy recovery! I as well as this young lady know the pain and financial stress of this! Godspeed to u and ur family!!
I'm dealing with breast cancer myself with many struggles as well. I'm no doctor but have read that cannabis is very good for lung cancer. I encourage you to research this remedy. Even read some late stage success testamonies. Massive prayers coming your way